Developing a Resource List - A Roadmap Project Guide For Providers and Clinical Teams

Sep 12, 2026

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Developing a Resource List provides a practical roadmap for clinical teams and providers supporting children and adolescents with chronic conditions and their families. Built through collaboration with patients, parents, and clinicians, it explains why additional guidance may be needed beyond physicians and subspecialty teams. The guide includes an overview of how to define the audience, decide sharing channels, and select condition- or disease-specific resources. It also offers an example resource list and a template for directing families on how to find a therapist.

LanguageEnglish

CategoryLetters

FormatPDF

Pages7

Reading Time3 min

AccessFree to download

Overview - Developing a Resource List

Purpose

Who will use your resource list?

How will the resource list be shared?

Identify resources to include

Example Resources for Clinical Centers to Consider to Include in a Resource List

Insurance and referral options

National and state resources

Developing a Resource List A Roadmap Project Guide For Providers and Clinical Teams Following are several documents that have been developed in collaboration with patients, parents, and clinicians as part of The Roadmap Project, which aims to improve the emotional health of children and adolescents with chronic conditions and their families. These resources and the template may also be helpful for children, adolescents, and families without the experience of chronic conditions. 1. Overview – Developing a Resource List: An introductory page that outlines what questions a clinical team will want to consider when developing a resource list and what to share with patients. 2. Example Resources for Clinical Centers to Consider: Clinicians and clinical teams highlighted the need to develop a resource list for their practice setting for those families who wanted referrals for resources outside of the health system. 3. Resource List Template: A template that can be adapted by local centers to give to patients and families about “how to find a therapist”. This template can be adapted as appropriate by the center, perhaps including identified local or state resources. SECTION ONE Overview – Developing a Resource List Purpose Patients and parents working with Roadmap have repeatedly stressed you don’t have to be a mental health professional to make a difference. Yet, sometimes families will need more support than a physician or subspecialty team can provide. This tool is designed to help you think through creating a resource list to provide additional support, or to help you update or expand an existing list. Who will use your resource list? Consider • Is the list for you as the provider? • Is the list for patients? • Is the list for a targeted age group (e.g. , pre-teen, teen)? • Is the list for caregivers , patients (including youth from diverse backgrounds) , or other family members (e.g. , siblings)? How will the resource list be shared? • Paper handout or a binder • Email • via MyChart or other patient portal • Discussions at visits • Linked from a QR code “Brainstorm about what resources you have. It was really helpful when I sat down with my Identify Resources to Include division and realized ‘We *do* have a lot of resources!’ People just focus on a social Begin by considering the resources worker– “Oh, we don't have that so we can't listed in the section two below. do anything.”But we have a great child life Consider including disease or specialist, and there are online free condition-specific resources, as well resources. All of the chronic conditions have as local resources not included on foundations go online and become this list. acquainted with what resources are out therefor your families.” – UNC Children’s Hospital Roadmap Team SECTION TWO Example Resources for Clinical Centers to Consider to Include in a Resource List The following may be useful to you in developing a list of resources that you can have available to share with patients and families. These resources may especially be helpful for those who live outside of your service area or are encountering long wait lists. What works for your setting/region can be used in a template to share with patients and families. Identifying patient’s insurance can be an important first step in considering options for mental health support. Please see the example template in Section 3 for more guidance. • National Network of Child Psychiatry Access Programs. More than 35 states have a Child Psychiatry Access Program. Services vary by state but can be identified [for your state at](for your state at www.nncpap.org/map)[ ](for your state at www.nncpap.org/map)[www.nncpap.org/map](for your state at www.nncpap.org/map). • [Psychology Today list of providers](Psychology Today list of providers www.psychologytoday.com)[ ](Psychology Today list of providers www.psychologytoday.com)[www.psychologyt

FAQs

Do families need to be mental health professionals to use this resource list approach?

No. The guide emphasizes that patients and parents working with Roadmap have stressed that you do not have to be a mental health professional to make a meaningful difference. Providers can use the tool to add support when usual medical teams are insufficient.

How should a clinical team decide who will use the resource list?

The guide prompts teams to consider whether the list is for the provider, for patients, for a targeted age group (such as pre-teen or teen), and whether it is for caregivers, youth from diverse backgrounds, or other family members like siblings.

What kinds of resources should be included in the resource list template?

The guide recommends starting with resources outlined in a later section, including disease or condition-specific resources, and adding local resources not already captured in the list. It also notes that national foundations often provide online information for families.

Sep 12, 2026

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