Data Sharing Agreement Template - Examples from the Early Hearing Detection, and Intervention Program (EHDI) and Early Intervention Programs - Updated July 15, 2024

Sep 16, 2026

Upload by Rizky

Template and sample language for drafting data sharing agreements and memoranda of understanding (MOU) between service providers for children who are deaf or hard of hearing. Provides suggested agreement components, descriptions, and example clauses drawn from existing state agreements and MOUs, plus resources for further reference. Covers partner identification, agreement purpose, applicable federal and state legal requirements, and definitions, with guidance to customize provisions based on state needs and legal authority.

LanguageEnglish

CategoryLetters

FormatPDF

Pages11

Reading Time4 min

AccessFree to download

Data Sharing Agreement Template - Overview

Suggested Components and Examples

Partner Identification

Purpose of the Agreement

Legal and Regulatory Requirements

Definitions

Data Sharing Agreement Template: Examples from the Early Hearing Detection, and Intervention Program (EHDI) and Early Intervention Programs updated July 15, 2024 For more information, visit: [https://ectacenter.org/topics/earlyid/ehdi.asp](https://ectacenter.org/topics/earlyid/ehdi.asp) This template provides users with examples of components, descriptions, and language to use for data sharing agreements and memoranda of understanding (MOU) between service providers for children who are deaf and hard of hearing. Items in this template are from existing state data sharing agreements or MOUs. Users are encouraged to add additional components as required or recommended in their state. Additional resources are also included. Suggestions when using this template: • Use the descriptions and examples included as guidance when developing your state agreement language. • Refer to the complete agreements for any examples provided in this template as well as additional state data sharing agreements at: [https://infanthearing.org/privacy/data-sharing](https://infanthearing.org/privacy/data-sharing)partnerships.html • Review the Individuals with Disabilities Education Act (IDEA), Family Educational Rights and Privacy Act (FERPA), Health Insurance Portability and Accountability Act (HIPAA), and other federal and state laws and regulations specific to your state when developing your agreement. • Consult with the appropriate legal authority within your state, such as your department's or program's legal team. The suggested components, descriptions and examples follow. The contents of this document were developed: • Under a grant, \#H373Z190002, and a cooperative agreement, \#H326P170001, from the Office of Special Education Programs, U.S. Description Introduce the data sharing partners and give the official name of each organization. For this agreement, the most likely parties that need to share data include Part C and EHDI but may also include state school for the deaf, birth defects registry, children with special healthcare needs, autism registry, home visiting, and other programs serving this population. Example from one existing state agreement a. This Data Sharing Agreement ("Agreement") is between the Department of Health (DOH), Early Hearing Detection, and Intervention Program ("EHDI Program") and the Department of Health and Human Services Early Intervention Program ("Part C Program") . 2. Purpose Description Provide the reason(s) and intent for the agreement. Examples from two existing state agreements a. The purpose of this agreement is to enable audits or evaluations of the Part C Program and EHDI Program within the state. Personal identifiable information (PII) from early intervention records and EHDI records are being shared for purposes of program improvement and meeting outcomes for both programs including if newborns in the state are enrolled in Early Intervention before 6 months of age, as recommended by the Joint Committee on Infant Hearing (JCIH) to optimize cognitive, language and social-emotional developmental outcomes. b. The purpose of this Agreement is to facilitate the sharing of state Childhood Assessment Data between the state's Sound Beginnings, the state Department of Health (DOH), and Welfare and the state University's Collaborative Assessment Project. This will enable each entity to collect information about children with hearing loss to correlate early identification of hearing loss and entry into early intervention (EI) programs with those children's EI outcomes. Description Identify federal and state laws and other requirements applicable to the data sharing among the participating parties. Examples from three existing state agreements a. WHEREAS,[insert name of Office] acts as the data management and integration agent for the state EHDI Program; WHEREAS, the Part C and the EHDI program wish to share data in accordance with the terms and conditions of thi

FAQs

What is the purpose of this data sharing agreement template?

It provides example components, descriptions, and language for data sharing agreements and MOUs between service providers serving children who are deaf or hard of hearing.

Which types of data sharing partners are likely involved?

Common parties include Part C and EHDI, and may also include programs such as state schools for the deaf, registries, home visiting, and other services for this population.

What legal requirements does the template prompt users to consider?

It recommends reviewing federal and state laws and regulations applicable to the agreement, including IDEA, FERPA, HIPAA, and other requirements specific to the state, and consulting the appropriate legal authority.

Sep 16, 2026

Upload by Rizky