World Eye Cancer Hope - Provisional Program - Family and Survivor Day, Scientific Program Day 1 - October 15-16, 2024

Oct 3, 2026

Provisional program schedule for World Eye Cancer Hope covering Family and Survivor Day on Tuesday, October 15, 2024, and Scientific Program Day 1 on Wednesday, October 16, 2024. The agenda includes registration and welcome remarks, sessions on retinoblastoma history, genetics, adult survivorship, survivorship topics, parent perspectives, and prosthetic eyes, with scheduled breaks and lunch. It also lists keynote activities and a welcome reception location, alongside multiple named moderators, panelists, and speakers.

LanguageEnglish

CategoryHealthcare

FormatPDF

Pages12

Reading Time30 min

AccessFree to download

Program Schedule

Tuesday, October 15, 2024

Wednesday, October 16, 2024

HOST ED BY: World Eye Cancer Hope PROGRAM SCHEDULE PROGRAM Tuesday, October 15, 2024 Family and Survivor Day Main Location (except for lunch and welcome reception): Ainahau Showroom on the 2nd Floor of Sheraton Princess Kaiulani, 120 Ka’iulani Avenue, Honolulu, Hawaii 8:00 – 9:00 AM: Registration and Breakfast 9:00 – 9:10 AM: Welcome Remarks 9:10 – 9:30 AM: A History of Retinoblastoma, World Eye Cancer Hope, and One Retinoblastoma World Presenters: • Sandra E. Staffieri, Ph.D. , Retinoblastoma Care Co-Coordinator/Senior Clinical Orthoptist, Royal Children’s Hospital, Melbourne, Australia; Research Fellow, Centre for Eye Research Australia; Officer of the Order of Australia; Scientific Program Co-Chair, One Retinoblastoma World 2024; Presentation: A History of Retinoblastoma. • Abby White , Co-Founder of World Eye Cancer Hope and Chief Executive, World Eye Cancer Hope UK, Oxford, England; Bilateral Retinoblastoma Survivor; Presentation: A History of World Eye Cancer and One Retinoblastoma. 9:35 – 10:35 AM: Genetics Moderator: • Melissa B. Mills , Board of Directors, World Eye Cancer Hope USA, Menlo Park, California; Relief Genetic Counselor in Perinatal Genetics, Stanford Medicine Children’s Health, Palo Alto, California; Bilateral Retinoblastoma Survivor. Panelists: • Pernille Axél Gregersen, M.D., Ph.D. , Chief Physician, Aarhus University Hospital, Aarhus, Denmark; Presentation: TBD. • Molly McGuinness , Genetic Counselor, Stanford Medicine Children’s Health, Palo Alto, California; Presentation: TBD. • Melissa B. Mills , Board of Directors, World Eye Cancer Hope USA, Menlo Park, California; Relief Genetic Counselor in Perinatal Genetics, Stanford Medicine Children’s Health, Palo Alto, California; Bilateral Retinoblastoma Survivor; Presentation: TBD. 10:35 – 10:45 AM: Break 10:45 AM – 12:15 PM: Adult Survivors Moderator: • Grace Padilla , Neuroscience Ph. D. Candidate, University of California, San Diego; Unilateral Retinoblastoma Survivor. Panelists: • DJ Burzon, J.D. , Assistant Prosecutor, Monmouth County Prosecutor’s Office, Ashbury Park, New Jersey; Unilateral Retinoblastoma Survivor; Pre-Recorded Talk. • Zaakirah Muhammad , Founder, See Life Different Media, Tulsa, Oklahoma; Bilateral Retinoblastoma Survivor. • Genevieve McCarthy, President, Canadian Retinoblastoma Society, Toronto, Canada; Unilateral Retinoblastoma Survivor. • Grace Padilla , Neuroscience Ph. D. Candidate, University of California, San Diego; Unilateral Retinoblastoma Survivor. 12:15 – 1:45 PM: Lunch Lunch Location: Kapuni Room on the 11th Floor of Sheraton Princess Kaiulani 1:50 – 2:00 PM: Afternoon Welcome Remarks and Keynote Introduction 2:00 – 2:20 PM: Keynote Address Speaker: • Sassy Outwater-Wright , Interfaith Clinical Care Chaplain and Certified Patient Advocate, Salem, Massachusetts; Bilateral Retinoblastoma Survivor. 2:25 – 3:20 PM: Survivorship Moderator: • Marissa D. Gonzalez , President, World Eye Cancer Hope USA, Long Beach, California; Bilateral Retinoblastoma and Melanoma Survivor; Event Chair, One Retinoblastoma World 2024. Panelists: • David R. Freyer, D.O., M.S. , Professor of Clinical Pediatrics, Medicine, and Population & Public Health Sciences, Keck School of Medicine of USC, Los Angeles, California; Director, Survivorship and Supportive Care Program, Children’s Hospital Los Angeles; Presentation: An Overview of Cancer Survivorship Programs. • Zali O’Dea, Ph.D. , Director, Principal Counsellor & Education, Karibu Anawim, Victoria, Australia; Presentation: Grief and Eye Loss: Finding a Way Forward. • Susan Pultman, L.C.S.W., M.Ed. , Oncology Social Worker, Children’s Hospital of Philadelphia, Pennsylvania; Presentation: Psychosocial Aspects of Rb. 3:20 – 3:40 PM: Break 3:40 – 4:45 PM: The Parent Perspective Moderator: • Lori Baños , Vice President and Founding Board Member, World Eye Cancer Hope USA, South Amana, Iowa; Retinoblastoma Paren

FAQs

What are the main sessions listed for Tuesday, October 15, 2024?

The schedule includes registration and breakfast, welcome remarks, a session on retinoblastoma history and related talks, a genetics panel, adult survivors, lunch, a keynote address, and sessions on survivorship, the parent perspective, and prosthetic eyes, followed by closing remarks and a welcome reception.

Who moderates the Genetics session on Tuesday, October 15, 2024?

Melissa B. Mills moderates the Genetics session, with multiple panelists listed for presentations marked as TBD.

Where are the program and reception venues located on Tuesday, October 15, 2024?

Most sessions (except lunch and the welcome reception) are held at Ainahau Showroom on the 2nd Floor of Sheraton Princess Kaiulani, and the welcome reception is at Pikake Pool Terrace on the 1st Floor of Sheraton Princess Kaiulani.

Oct 3, 2026

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