Understanding and Promoting Resources and Opportunities for People with Autism and Fragile X Syndrome (FXS) and their Families Across the Lifespan - Opportunity CDC-RFA-DD-26-0025 - Funding Opportunity

Sep 26, 2026

Uploaded by Rhys

Notice of Funding Opportunity for the Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD), seeking applications to better understand resources and opportunities for people with autism and Fragile X syndrome (FXS) and their families across the lifespan. Applications are due June 15, 2026, and CDC plans to support three components, including SPROUT and FAST FORWARD surveillance projects that collect caregiver and self-report data. The collected evidence will inform strategies to reduce costs, morbidity and mortality, and improve long-term health and well-being.

LanguageEnglish

CategoryHealthcare

FormatPDF

Pages95

Reading Time3 h 59 min

AccessFree to download

Before you begin

Step 1: Review the opportunity

Basic information

Eligibility

Agency priorities

Program description

Step 2: Get ready to apply

Get registered

Find the application package

Help applying

Join the informational call

Step 3: Build Your Application

Application checklist

Application contents and format

Step 4: Understand Review, Selection, and Award

Application review

Award notices

Step 5: Submit Your Application

Submission requirements and deadlines

Step 6: Learn What Happens After Award

Post-award requirements and administration

Contacts and Support

Appendix A

Appendix B

Appendix C

Endnotes

Notice of Funding Opportunity Application due Monday, June 15, 2026 National Center on Birth Defects and Developmental Disabilities (NCBDDD) Division of Human Development and Disability Understanding and Promoting Resources and Opportunities for People with Autism and Fragile X Syndrome (FXS) and their Families Across the Lifespan Opportunity number: CDC-RFA-DD-26-0025 Contents Before you begin 4 | Step 1: Review the opportunity 5
Basic information 6
Eligibility 11
Agency priorities 15
Program description 18 | | | --- | --- | | Step 2: Get ready to apply 55
Get registered 56
Find the application package 57
Help applying 57
Join the informational call 58 | | | Step 3: Build Your Application
Application checklist
Application contents and format | 59
60
62 | | Step 4: Understand Review, Selection, and Award
Application review
Award notices | 72
73
74 | | Step 5: Submit Your Application
Submission requirements and deadlines | 75
76 | | Step 6: Learn What Happens After Award
Post-award requirements and administration | 78
79 | | Contacts and Support | 82 | | Appendix A | 85 | | Appendix B | 89 | Appendix C 91 Endnotes 93 Before you begin If you believe you are a good candidate for this funding opportunity, secure your [SAM.gov](SAM.gov) and [Grants.gov](Grants.gov) registrations now. If you are already registered, make sure your registrations are active and up-to-date. [SAM.gov](SAM.gov) registration (this can take several weeks) You must have an active account with [SAM.gov. This](SAM.gov. This) includes having a Unique Entity Identifier (UEI) . See Step 2: Get ready to apply [Grants.gov](Grants.gov) registration (this can take several days) You must have an active [Grants.gov](Grants.gov) registration. Doing so requires a [Login.gov](Login.gov) registration as well. See Step 2: Get ready to apply Apply by the application due date Applications are due by 11:59 p. m. Eastern Time on Monday, June 15, 2026. To help you find what you need, this NOFO uses internal links. In Adobe Reader, you can go back to where you were by pressing Alt + Left Arrow (Windows) or Command + Left Arrow (Mac) on your keyboard. 1. Review 2. Get Ready 3. Build 4. Understand 5. Submit 6. Award Contacts Step 1: Review the opportunity In this step Basic information 6 Eligibility 11 Agency priorities 15 Program description 18 Basic information Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD) Division of Human Development and Disability Understanding and promoting resources and opportunities to improve long-term outcomes for people with autism or fragile X syndrome and their families across the lifespan. Summary This NOFO aims to better understand the resources and opportunities that people with autism or FXS and their families need, in areas including education, transition into young adulthood, and services and supports. The goal is to reduce morbidity and mortality, as well as improve long-term outcomes including health and wellbeing. CDC will fund three components under this NOFO. You may apply for one or more components, as long as you meet the eligibility requirements for each. Gathering data on services and needs Component A: SPROUT surveillance project Project This surveillance project, the Survey to Promote Resources and Opportunities for aUtistic Teens and young adults (SPROUT), will utilize cohorts from the Study to Explore Early Development (SEED) Phases 1-3 (collected from 2007-2020), • These were case-control studies of autism in children 2-5 years of age. • SEED 1-3 participants will range from about 10-28 years of age during the data collection period. Data collected SPROUT will be comprised of caregiver and self-report surveys. Have questions? Go to Contacts and Support. Key facts Opportunity name

FAQs

What is the submission deadline and the expected award and start dates?

Applications are due by 11:59 p.m. Eastern Time on Monday, June 15, 2026. The expected award date is August 31, 2026, and the expected start date is September 30, 2026.

What are the SPROUT and FAST FORWARD surveillance projects designed to collect?

SPROUT uses cohorts from SEED phases 1–3 and will collect caregiver and self-report surveys. FAST FORWARD will use clinic-based enrollment at three sites and collect data on diagnosis timing and barriers and on service, support, educational, transitional, social, and vocational needs.

What outcomes will the surveillance data help inform?

The collected data will help inform ways to lessen individual, familial, and societal costs associated with autism or FXS, reduce morbidity and mortality, and improve health and well-being.

Sep 26, 2026

Uploaded by Rhys