TRANSITIONS BETWEEN SELF AND PROXY - Completion of Nursing Home Resident Care and Activity Preferences - 2025 Vol. 9 No. S2

Sep 29, 2026

Uploaded by jayni

Identification of nursing home residents’ preferences for care and activities is essential for person-centered care, yet the accuracy and downstream effects of proxy reporting remain uncertain. This retrospective cohort study used MDS 3.0 data (2019; N=357,321) with two preference assessments to examine transitions across self and proxy respondents. Preference respondent changed in 40,799 residents, with distinct self-to-family, self-to-staff, family-to-resident, and staff-to-resident patterns. Dementia rates and cognitive trajectories varied by transition type, and reporter-specific differences were observed in which preferences were deemed important, informing early preference assessment and proxy-report impact.

LanguageEnglish

CategoryHealthcare

FormatPDF

Pages1

Reading Time3 min

AccessFree to download

Background

Person-centered care and preference identification

Study design and data

Retrospective cohort using MDS 3.0 (2019)

Results

Transition patterns across respondent types

Dementia rates and cognition changes

Reporter differences in preference importance

Implications and future research

Importance of early preference assessment

FAQs

What was the study’s main purpose?

To investigate transitions between self and proxy respondents for nursing home residents’ care and activity preferences and to assess related predictors and impacts on preference patterns.

What data and criteria were used for the cohort?

The retrospective cohort included residents with two completed preference assessments from the 2019 MDS 3.0, totaling N=357,321 residents.

How did cognition change when preference reporting shifted?

Cognition worsened in all cases where self-report was lost and improved in all cases where self-report was resumed.

Sep 29, 2026

Uploaded by jayni