THROUGH THE BURDEN - A MODEL OF SELF-TRANSCENDENCE IN IN FAMILY CAREGIVERS OF NH RESIDENTS

Q: What problem does the study address for family caregivers of NH residents with advanced dementia?

It targets high emotional and logistical burden and notes that many models do not sufficiently address meaning-making and personal growth after placement.

Q: Which theory guides the study’s model?

Reed’s Self-Transcendence (ST) theory is used to explore how caregiving can foster adaptation and meaning.

Q: How do perceptions of family-centered care relate to caregiver self-transcendence?

Perceptions significantly reduce caregiver burden, and lower burden is associated with higher self-transcendence; the effect of family-centered care on ST is significant only through full mediation by burden.

Sep 29, 2026

Uploaded by Indoniesian Boy

Family caregivers of nursing home residents with advanced dementia face substantial emotional and logistical burden, yet existing models often focus on stress and coping rather than meaning-making and personal growth. This study applies Reed’s Self-Transcendence theory to test whether perceptions of family-centered care predict caregiver burden and self-transcendence. A cross-sectional survey of 232 caregivers used structural equation modeling, finding family-centered care perceptions lowered burden, which in turn increased self-transcendence via full mediation. Results support interventions and NH policies emphasizing structured communication, family engagement, and decision-support to reduce burden and foster resilience, meaning-making, and role adaptation.

LanguageEnglish

CategoryHealthcare

FormatPDF

Pages1

Reading Time3 min

AccessFree to download

Background

Objective

Methods

Results

Conclusions

1270 Innovation in Aging, 2025, Vol. 9, No. S2 symptom management, communication, trust, shared decision-making, and recognition of personhood), in NH staff, burden, and ST. Results: Structural equation modeling revealed that Perception of Family-Centered Care significantly predicted lower caregiver burden (β = –.611, p < .001) . In turn, lower burden was associated with higher ST (β = –.52, p = .002) . The direct path from Perception of Family-Centered Care to ST was nonsignificant (β = –.154, p = .218). However, the indirect effect from Perception of Family-Centered Care to ST through caregiver burden was significant (β = .67, 95% CI [.214 – 2.253], p = .000), indicating full mediation. Conclusions: Findings highlight the transformative nature of family caregiving in the NH setting. Recognizing family caregiving as a dynamic, transformative process can guide interventions that help family caregivers move through the burden-transcend toward meaning and connection. NH policies should consider integrating structured communication, family engagement, and decision-making support to reduce burden while fostering resilience, meaning-making, and role adaptation. Abstract citation ID: igaf122.4240 THROUGH THE BURDEN: A MODEL OF SELF-TRANSCENDENCE IN IN FAMILY CAREGIVERS OF NH RESIDENTS Dalit Zaguri-Greener1, Ruth Lopez2, and Anna Zisberg1, 1. University of Haifa, Haifa, Hefa, Israel, 2. MGH Institute of Health Professions, Sharon, Massachusetts, United States Background: Family caregivers of nursing home (NH) residents with advanced dementia often experience high emotional and logistical burden. While most models emphasize stress and coping, fewer address meaning-making and personal growth. This study applies Reed’s Self-Transcendence (ST) Theory to explore how caregiving may foster adaptation and meaning after placement. Objective: To examine whether perceptions of family-centered care predict caregiver burden and ST. Methods: Using a cross-sectional survey of 232 family caregivers of NH residents with advanced dementia, we examined the relationships between “Perception of Family-Centered Care” (basic care,

FAQs

What problem does the study address for family caregivers of NH residents with advanced dementia?

It targets high emotional and logistical burden and notes that many models do not sufficiently address meaning-making and personal growth after placement.

Which theory guides the study’s model?

Reed’s Self-Transcendence (ST) theory is used to explore how caregiving can foster adaptation and meaning.

How do perceptions of family-centered care relate to caregiver self-transcendence?

Perceptions significantly reduce caregiver burden, and lower burden is associated with higher self-transcendence; the effect of family-centered care on ST is significant only through full mediation by burden.

Sep 29, 2026

Uploaded by Indoniesian Boy