FEASIBILITY OF RECRUITING PEOPLE WITH ALZHEIMER’S DISEASE AND RELATED DEMENTIAS IN HEALTHCARE RESEARCH

Sep 29, 2026

Upload by Oliver

Alzheimer’s Disease and Related Dementias (ADRD) are increasing, and delivering patient-centered care requires more research. This pilot study tested feasibility of collecting self-reported health and well-being data from people with ADRD using a short portable mental status questionnaire after clinic visits. Participants were identified via dementia diagnoses in EPIC at a geriatric clinic in eastern North Carolina. Of 35 who consented, 25 completed the survey (>70%); interviews highlighted needs for improved person-centered dementia care and resources. Findings show survey completion was not difficult and self-reporting is feasible for research to support person-centered care design.

LanguageEnglish

CategoryResearch & Report

FormatPDF

Pages2

Reading Time5 min

AccessFree to download

Abstract

Study aim and setting

Recruitment and data collection

Participants and survey outcomes

Key qualitative findings

Conclusions and implications

650 Innovation in Aging, 2025, Vol. 9, No. S2 Abstract citation ID: igaf122.2223 FEASIBILITY OF RECRUITING PEOPLE WITH ALZHEIMER’S DISEASE AND RELATED DEMENTIAS IN HEALTHCARE RESEARCH Rashmita Basu, Donna Roberson, Rodriguez Gonzalez, and Shivrajo Patil, East Carolina University, Greenville, North Carolina, United States Innovation in Aging, 2025, Vol. 9, No. S2 651 With Alzheimer’s Disease and Related Dementia (ADRD) increasing in the U.S., more research is needed to deliver patient-centered care. However, recruiting people with ADRD is challenging—this pilot study aimed to test the feasibility of collecting self-reported health data from people with ADRD. The primary data collection site was a geriatric clinic in eastern North Carolina. Potential patients were identified based on dementia diagnoses from the electronic medical record system (EPIC) . After the clinic visits with the healthcare providers, we consented to those with “mild” or “moderate”dementia using a short portable mental status questionnaire. Participants self-reported (in person or over the phone) survey questions focused on their health and well-being. Thirty-five patients with ADRD consented to the study, and 25 participants completed the survey (>70% completion rate) . The sample average age was 71; 62% were female, 42% were White, 56% were African American, and 54% had limitations in at least one daily activity. Participants were satisfied with their life circumstances, with an average score of 4.5 (range 0-5) . Qualitative interviews indicated the need for improvements in dementia care, including better person-centered care and resources. None expressed difficulty with the survey completion. Although recruiting people with ADRD for healthcare research is challenging, it can be done. Partnering with healthcare providers and community support groups was an effective recruitment strategy. Our results indicate that community-dwelling individuals with ADRD can complete the surveys to report their health and well-being. Self-reporting was feasible and should be used in research to design person-centered care.

FAQs

What was the goal of the pilot study?

The pilot study aimed to test the feasibility of collecting self-reported health data from people with ADRD for healthcare research.

How were participants recruited and screened?

Potential patients were identified from electronic medical record dementia diagnoses (EPIC) at a geriatric clinic, and consent was obtained from individuals with mild or moderate dementia.

What were the survey completion results?

Thirty-five patients consented, and 25 completed the survey, yielding a completion rate above 70%.

What does the study suggest about using self-reporting in research?

Self-reporting was feasible and should be used in research to help design improved person-centered dementia care.

Sep 29, 2026

Upload by Oliver