DEMENTIA IN AFRICAN AMERICAN DYADS AND BLACK IMMIGRANT FAMILIES - LESSONS FROM IMPACT-AD

Sep 29, 2026

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IMPACT-AD aims to train future ADRD clinical trialists by turning discovery investments into measurable outcomes for patients and families. The presentation (scholars from Summer 2021 and 2022) reviews program lessons through a curated weeklong workshop. It covers study design for dementia trial work with dementia dyads and analytic strategies for behavioral interventions with care partners, emphasizing successful phase-one implementation of a mixed-methods approach to decision self-efficacy. Data from 39 African American parent-adult daughter dyads were analyzed with multilevel modeling, revealing significant parent and daughter differences tied to family processes and patient-provider confidence.

LanguageEnglish

CategoryHealthcare

FormatPDF

Pages1

Reading Time3 min

AccessFree to download

IMPACT-AD workshop and objectives

Study design and intervention analytics

Phase-one mixed-methods and decision self-efficacy results

Scholar skills and ongoing clinical trial implementation

Innovation in Aging, 2025, Vol. 9, No. S2 443 School of Medicine, Farmington, Connecticut, United States, 6. Benjamin Rose Institute on Aging, Cleveland, Ohio, United States, 7. Boston College, Chestnut Hill, Massachusetts, United States The goal of IMPACT-AD is to “train the next generation of ADRD clinical trialists, to ensure that investments in discovery yield outcomes for patients and families.”This program offers aweeklong summer workshop with curated sessions. In this presentation, scholars (Summer 2021 and 2022) will discuss the program’s impact on their work and career. Lessons learned include: 1) study design for the development of a clinical trial for dementia dyads (described below) and 2) identifying analytic approaches for behavioral interventions with dementia care partners. Specifically, we will offer outcome data to highlight how IMPACT-AD facilitated the successful implementation of phase one of a mixed-methods intervention to understand the decision self-efficacy (DSE) of dementia care dyads. Data from 39 African American parent-adult daughter dementia dyads was analyzed using multilevel modeling. On average, parents’DSE was significantly lower than their adult daughters’ DSE. Parents experienced significantly better DSE when they perceived a more positive family decision-making process, reported a positive interaction within the dyadic relationship with their daughter, and had daughters who reported an “intense motivation to succeed.”Adult daughters experienced significantly better DSE when they reported better general family functioning and had greater confidence in their parent’s patient-provider relationship. However, daughters experienced significantly worse DSE when their parents perceived a more positive family decision-making process. Not all scholars’ projects are in the data analysis phase. Cumulatively, scholars gained skills from participation in IMPACT-AD and its annual scientific retreats that they continue to implement in current and planned clinical trial projects. Abstract citation ID: igaf122.1508 DEMENTIA IN AFRICAN AMERICAN DYADS AND BLACK IMMIGRANT FAMILIES: LESSONS FROM IMPACT-AD Kalisha Bonds Johnson1, Manka Nkimbeng2, Joshua Grill3, Rema Raman4, Kenneth Hepburn1, Wizdom Powell5, Carol Whitlatch6, and Karen Lyons7, 1. Emory University, Atlanta, Georgia, United States, 2. University of Minnesota School of Public Health, Minneapolis, Minnesota, United States, 3. University of California, Irvine, Irvine, California, United States, 4. University of Southern California, Los Angeles, California, United States, 5. University of Connecticut

FAQs

What is the primary purpose of IMPACT-AD?

IMPACT-AD trains the next generation of ADRD clinical trialists to ensure that discovery investments produce outcomes for patients and families.

Which mixed-methods outcome does the phase-one implementation focus on?

The phase-one mixed-methods approach targets the decision self-efficacy (DSE) of dementia care dyads.

How were DSE differences assessed among the dyad participants?

The presentation reports analysis of 39 African American parent-adult daughter dementia dyads using multilevel modeling, comparing parents’ and daughters’ DSE and linking results to family processes and relationship factors.

Sep 29, 2026

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