CULTURAL ADAPTATION OF AN EVIDENCE-BASED DYADIC POST DIAGNOSIS SUPPORT INTERVENTION FOR AFRICAN AMERICAN DYADS - No. S2 - Presentation Abstract

Sep 29, 2026

African American older adults face higher dementia prevalence and distinct cultural, structural, and social barriers that can reduce access to and engagement with supportive care interventions. SHARE for Dementia is an evidence-based early-stage dyadic program for people living with dementia and their care partners to support informed care planning decisions. A two-phase community-engagement approach carried out the first cultural adaptation, using advisory review and focus groups, identifying key themes and iteratively developing Version 2 through documented FRAME-guided modifications.

LanguageEnglish

CategoryHealthcare

FormatPDF

Pages1

Reading Time3 min

AccessFree to download

Cultural adaptation overview

Phase 1: Advisory committee review

Phase 2: Focus groups and thematic findings

Development of SHARE Versions 1 and 2

Barriers addressed and next-step testing

Innovation in Aging, 2025, Vol. 9, No. S2 1223 Abstract citation ID: igaf122.4092 CULTURAL ADAPTATION OF AN EVIDENCE-BASED DYADIC POST DIAGNOSIS SUPPORT INTERVENTION FOR AFRICAN AMERICAN DYADS Silvia Orsulic-Jeras1, Lauren Parker2, Kalisha Bonds Johnson3, Donna Salaam1, and Zoe Fete1, 1. Benjamin Rose, Cleveland, Ohio, United States, 2. Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, United States, 3. Emory University, Atlanta, Georgia, United States African American older adults are twice as likely to be affected by dementia than non-Hispanic whites. They report unique cultural, structural, and social challenges that can limit access to and engagement with supportive care interventions. SHARE for Dementia is an evidence-based, early-stage dyadic intervention designed to support persons living with dementia (PLWDs) and their care partners in making informed care planning decisions. This presentation describes the first cultural adaptation of SHARE for African American care dyads using a two-phase, community-engagement approach. Phase 1 consisted of a review of the original SHARE protocol by an Advisory Committee (AC; n = 8) comprised of dementia caregiving and subject matter experts. The AC reviewed existing SHARE materials, identified cultural considerations and priorities needed to improve relevance, accessibility, and acceptability. Using a similar methodology, the second phase convened focus groups of African American caregivers and early-stage PWLDs (n = 11) . A thematic analysis revealed the following themes: medical mistrust, stigma, lack of dementia education, importance of faith-based support, complex family dynamics, and familial support with future care. Based on these findings, Version 1 of SHARE was developed. Using an iterative approach, both groups reconvened to evaluate V1, yielding refinements that guided development of Version 2, a testable, culturally tailored SHARE. Intervention modifications were systematically documented using the Framework for Reporting Adaptations and Modifications (FRAME) Model. This presentation addresses critical barriers to care planning engagement in African American dyads and lays the groundwork for future testing to determine preliminary efficacy of the culturally adapted SHARE.

FAQs

What is SHARE for Dementia designed to do?

It is an evidence-based early-stage dyadic intervention that supports people living with dementia and their care partners in making informed care planning decisions.

How was the cultural adaptation conducted?

The work used a two-phase community-engagement approach: an advisory committee review of the original protocol and subsequent focus groups with African American caregivers and early-stage PLWDs.

Which themes emerged from the focus group thematic analysis?

Themes included medical mistrust, stigma, limited dementia education, the importance of faith-based support, complex family dynamics, and the role of familial support for future care.

Sep 29, 2026

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