A CULTURALLY TAILORED DECISION AID TO SUPPORT DEMENTIA CARE PLANNING AMONG CHINESE AMERICAN FAMILY CAREGIVERS

Sep 28, 2026

Uploaded by James

Chinese American family caregivers face growing complexity in dementia care planning as this population ages rapidly. A culturally tailored, web-based decision aid was developed to support informed choices about home and long-term care, covering dementia symptom information by stage, care options, costs, insurance coverage, and key decision factors. The tool includes a Self-Assessment that generates personalized summaries for decision-making. With 10 caregivers, web use and usability/acceptability surveys supported highly positive satisfaction and actionable feedback, informing future integration interventions.

LanguageEnglish

CategoryHealthcare

FormatPDF

Pages1

Reading Time3 min

AccessFree to download

Abstract

Background and need

Decision aid design and features

Study recruitment and methods

Results and participant feedback

Future work

Innovation in Aging, 2025, Vol. 9, No. S2 251 Abstract citation ID: igaf122.844 A CULTURALLY TAILORED DECISION AID TO SUPPORT DEMENTIA CARE PLANNING AMONG CHINESE AMERICAN FAMILY CAREGIVERS Chien-Ching Li1, Tingfei Hu1, Sharon Mei2, Samantha Wu2, and Olimpia Paun1, 1. Rush University, Chicago, Illinois, United States, 2. University of Illinois Chicago, Chicago, Illinois, United States The Chinese American population, the largest Asian subgroup in the U.S., is aging rapidly. Consequently, Chinese American family caregivers of individuals with dementia face increasing challenges in healthcare planning. We have developed a culturally tailored, web-based decision aid to help caregivers make informed choices about home and long-term care. The tool provides essential information on dementia symptoms across stages, care options, costs, insurance coverage, and key decision factors. It also includes a Self-Assessment that generates a personalized summary to guide caregivers’ decision-making process. In partnership with two Chinese community organizations in Chicago, we recruited a total of n = 10 Chinese American family caregivers of loved ones living with dementia or potential dementia symptoms for the study. Participants were asked to use the web-based DA tool and complete usability and acceptability surveys. Descriptive analysis was conducted to describe the usability and acceptability testing results. Results indicated that study participants were highly satisfied with the DA tool. Key feedback reported by the majority of participants includes: (1) the length and amount of information presented in the tool was just right,(2) this tool can provide sufficient information to make appropriate care decisions for loved ones with dementia.,(3) various functions in this tool are well integrated, and (4) I will frequently use this tool to help me discuss dementia care plans and decisions with family and providers. Future efforts should focus on developing and implementing interventions that integrate the web-based decision-aid tool to better support Chinese American family caregivers.

FAQs

What problem does the decision aid address for Chinese American dementia caregivers?

It supports culturally tailored dementia care planning for Chinese American family caregivers who face increasing challenges when making healthcare and long-term care decisions.

What information does the web-based tool provide?

The tool presents dementia symptom information across stages and key decision factors, along with care options, costs, and insurance coverage.

How was the decision aid evaluated in the study?

A total of 10 Chinese American family caregivers were recruited with community partners, used the web-based tool, and completed usability and acceptability surveys.

Sep 28, 2026

Uploaded by James