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The purpose is to help the NHS monitor and improve cancer service quality and ensure the information is processed only for the survey. The text defines legal authority for receiving and processing confidential patient information, describes required data items, and explains how identifiers support surveys, checks, linkage, and demographic analysis.",{"@graph":63,"@context":119},[64,80,102],{"@type":65,"itemListElement":66},"BreadcrumbList",[67,71,74,77],{"item":68,"name":69,"@type":70,"position":9},"https://docshare.wps.com","Home","ListItem",{"item":72,"name":10,"@type":70,"position":73},"https://docshare.wps.com/template/",2,{"item":75,"name":41,"@type":70,"position":76},"https://docshare.wps.com/template/letters/",3,{"item":78,"name":59,"@type":70,"position":79},"https://docshare.wps.com/template/under-16-cancer-patient-experience-survey-data-sharing-agreement-15-january-2024-data-sharing-terms/281963/",4,{"url":78,"name":59,"@type":81,"image":82,"author":87,"headline":59,"publisher":90,"fileFormat":93,"inLanguage":57,"description":61,"dateModified":94,"datePublished":95,"encodingFormat":93,"isAccessibleForFree":96,"interactionStatistic":97},"DigitalDocument",{"url":83,"@type":84,"width":85,"height":86},"https://docshare.wps.com/thumbnails/under-16-cancer-patient-experience-survey-data-sharing-agreement-15-january-2024-data-sharing-terms/281963.png","ImageObject",442,249,{"name":88,"@type":89},"Nguyễn Văn Học","Person",{"url":68,"name":91,"@type":92},"DocShare","Organization","application/pdf","2026-10-19","2026-09-16",true,{"@type":98,"interactionType":99,"userInteractionCount":101},"InteractionCounter",{"@type":100},"ViewAction",10,{"@type":103,"mainEntity":104},"FAQPage",[105,111,115],{"name":106,"@type":107,"acceptedAnswer":108},"Who are the parties to the data sharing agreement and what role does Picker Institute Europe have?","Question",{"text":109,"@type":110},"The agreement is between the trust (name and address) and NHS England. Picker Institute Europe acts as the data processor under the sole instructions of NHS England as data controller.","Answer",{"name":112,"@type":107,"acceptedAnswer":113},"For what purpose may the shared data be processed?",{"text":114,"@type":110},"The data may be processed only in connection with the Under 16 Cancer Patient Experience Survey 2023 and for no other purposes.",{"name":116,"@type":107,"acceptedAnswer":117},"Which patient data items are required for the survey and why?",{"text":118,"@type":110},"Required items include name and address (including postcode), NHS number, sex, ethnic group, date of birth, discharge date and patient classification, ICD codes and specialty codes, plus site and trust codes and a patient record number. These enable mailing, duplicate checks, identity tracing, survey eligibility/versioning, analysis grouping, and linkage to other datasets.","https://schema.org",{"og:url":78,"og:type":121,"og:title":59,"og:site_name":91,"og:description":61},"article",{"robots":123,"canonical":78},"index,follow",{"doc_id":125,"site_id":56},281963,1790354874,{"code":4,"msg":5,"data":128},{"doc_id":125,"user_id":129,"nickname":88,"user_avatar":130,"doc_module":9,"category_id":40,"category_name":41,"doc_title":59,"doc_description":61,"doc_content":131,"file_id":132,"file_url":133,"file_type":134,"file_size":135,"view_count":101,"is_deleted":4,"is_public":9,"is_downloadable":9,"audit_status":9,"page_count":136,"language":137,"language_code":57,"site_id":56,"html_lang":57,"table_of_contents":138,"faqs":139,"seo_title":140,"seo_description":61,"update_tm":141,"read_time":47},1374402739827,"https://ap-avatar.wpscdn.com/avatar/14000c97e7351f1a627?x-image-process=image/resize,m_fixed,w_180,h_180&k=1787885694763230660","Under 16 Cancer Patient Experience Survey Data Sharing Agreement  \n\n| THIS AGREEMENT is made and will come into force on 15th January 2024 |  |\n| --- | --- |\n| 1 | Between:\u003Cbr>1) Name and address (the trust); and\u003Cbr>2) NHS England , 7-8 Wellington Place , Leeds , LS1 4AP\u003Cbr>For the purposes of this agreement, Picker Institute Europe is acting as the data processor under the sole instructions of the data controller, NHS England.\u003Cbr>Picker Institute Europe a company incorporated and registered in England and Wales under company number 3908160 and a registered charity in England with registered number 1081688 and in Scotland with registered number SC045048 and whose registered office is at Suite 6, Fountain House, 1200 Parkway Court, John Smith Drive, Oxford OX4 2JY (\"Picker\") . |\n| 2 | Definitions See Annex A |\n| 3 | BACKGROUND\u003Cbr>The Trust has agreed to provide the data items (listed in section 6 of this document) with NHS England (for Picker to process) for the purposes of the Under 16 Cancer Patient Experience Survey 2023.\u003Cbr>The data items provided to NHS England (for Picker to process) shall only be processed in connection with the Under 16 Cancer Patient Experience Survey 2023 and will not be used for any other purposes. |\n| 4 | Purpose, objectives of the information sharing:\u003Cbr>The Under 16 Cancer Patient Experience Survey (U16 CPES) is carried out to help the NHS monitor and improve the quality of cancer services so that they better meet patient needs. |\n| 5 | Legal powers for processing the data/information\u003Cbr>The Secretary of State for Health and Social Care has given approval for NHS England to receive and process the specified data for the purposes of U16 CPES 2023 , under Regulation 5 of the Health Service (Control of Patient Information) Regulations 2002 |\n\n\n|  | (“section 251 support”) , on the advice of the Confidentiality Advisory Group. This approval sets aside the common law duty of confidence and establishes a permissive gateway for Trusts to provide the specified information for the purposes of the survey. |\n| --- | --- |\n| 6 | Data items to be processed\u003Cbr>Data Item Justification NAME AND ADDRESS, INCLUDING POSTCODE The patient name and address will be needed for sending out postal surveys to patients. The postcode will also be used to determine patients’ indices of multiple deprivation. Deprivation may also be used for case‐mix adjustment. Case‐mix adjustment is a methodology for‘standardising’ the data to account for differences and to allow comparisons to be made more fairly. Postcode may also be used to map ICS of residence for analysis purposes. NHS NUMBER The NHS number will be included so that checks for duplicates can be made where patients appear more than once within a PTC sample, or if they appear in more than one PTC sample (i.e. if they have been cared for at more than one PTC site over the sampling period) . NHS number is also needed to conduct DBS checks so that families of deceased patients do not receive a questionnaire. In addition, the NHS number will be used to link U16 CPES data to the National Cancer Registration and Analysis Service (NCRAS) data held by NHS England (legacy NHS Digital) . Confidential patient information is provided to legacy NHS Digital to input into NCRAS under NHS England Directions. This element of the does not require a separate ‘s251’ as the legal basis is NHS England Directions, regarding providing and linking the U16 CPES data to NCRASNHS England have been directed by the Secretary of State under section 254 of 2012 Act. SEX, ETHNIC GROUP, DATE OF BIRTH These will be used to compare demographic groups’experiences of cancer care. They will also be compared to patients’ responses about their age, sex and ethnic group to ensure that the patient sample and response data are accurately matched. Small numbers principles will be applied with analysing, publishing and sharing data. Full date of birth will be required to enable DBS tracing of patients to check for any d","cbCaigsOgdt7i696","https://ap.wps.com/l/cbCaigsOgdt7i696","pdf",248801,13,"English","# Background\n# Purpose and objectives\n# Legal powers for processing\n# Data items to be processed","[{\"question\":\"Who are the parties to the data sharing agreement and what role does Picker Institute Europe have?\",\"answer\":\"The agreement is between the trust (name and address) and NHS England. Picker Institute Europe acts as the data processor under the sole instructions of NHS England as data controller.\"},{\"question\":\"For what purpose may the shared data be processed?\",\"answer\":\"The data may be processed only in connection with the Under 16 Cancer Patient Experience Survey 2023 and for no other purposes.\"},{\"question\":\"Which patient data items are required for the survey and why?\",\"answer\":\"Required items include name and address (including postcode), NHS number, sex, ethnic group, date of birth, discharge date and patient classification, ICD codes and specialty codes, plus site and trust codes and a patient record number. These enable mailing, duplicate checks, identity tracing, survey eligibility/versioning, analysis grouping, and linkage to other datasets.\"}]","Under 16 Cancer Patient Experience Survey Data Sharing Agreement - 15 January 2024 - Data sharing terms | PDF",1789569270]