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It outlines what a ToR should include—background, ground rules, expectations, definitions, purpose, membership roles, stepping down, confidentiality, meeting expectations, agenda and preparation, minutes, project length, and compensation. 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It provides background, sets goals and expectations, and acts as a reference for how the group will function.","Answer",{"name":111,"@type":106,"acceptedAnswer":112},"Why does the template recommend using plain language and explaining acronyms?",{"text":113,"@type":109},"It aims to ensure patient and public members can understand the initiative. Technical terms and even common acronyms should be explained in lay, easy-to-understand language.",{"name":115,"@type":106,"acceptedAnswer":116},"What key elements about membership and engagement does the template include?",{"text":117,"@type":109},"It covers member composition and diversity, how members are expected to share ideas and respect others’ time, and processes for advising, identifying priorities, reviewing documents, collecting and analyzing data, and connecting with stakeholders.",{"name":119,"@type":106,"acceptedAnswer":120},"How does the template address confidentiality and meeting expectations?",{"text":121,"@type":109},"It specifies trust and confidentiality expectations, including how emails are shared and whether meeting information must be kept confidential. It also details attendance commitments, agenda distribution, preparation time, meeting conduct, minutes/notes, meeting length, and compensation/reimbursement considerations.","https://schema.org",{"og:url":78,"og:type":124,"og:title":59,"og:site_name":91,"og:description":61},"article",{"robots":126,"canonical":78},"index,follow",{"doc_id":128,"site_id":56},163004,1790085815,{"code":4,"msg":5,"data":131},{"doc_id":128,"user_id":132,"nickname":88,"user_avatar":133,"doc_module":9,"category_id":35,"category_name":36,"doc_title":59,"doc_description":61,"doc_content":134,"file_id":135,"file_url":136,"file_type":137,"file_size":138,"view_count":9,"is_deleted":4,"is_public":9,"is_downloadable":9,"audit_status":9,"page_count":139,"language":140,"language_code":57,"site_id":56,"html_lang":57,"table_of_contents":141,"faqs":142,"seo_title":143,"seo_description":61,"update_tm":144,"read_time":76},2336464648746,"https://ap-avatar.wpscdn.com/davatar_276721f389ce27ea32af1340a28f341c","Terms of Reference (ToR) Template\nThis template was developed by the Patient Engagement (PE) Platform of the Alberta Strategy for Patient-Oriented Research (SPOR) Support for People and Patient-Oriented Research and Trials (SUPPORT) Unit (AbSPORU) to assist research teams and other groups in the co-development of terms of reference with their stakeholders and in particular their patient / public members.\nA research team, working group, or committee ToR\nis best co-developed at the first meeting, with all members of the research team, working group, or committee—all stakeholders;\nis the overarching guiding document for the Membership;\nprovides background information about the research or other undertaking to the team, group or committee;\nincludes “ground rules” and expectations;\nmust be agreed upon by all members before being finalized;\nserves as a reference document; and therefore,\nshould be provided to all members both electronically and in print, once developed.\nNote: It is important to use plain language where you can, and to explain all acronyms—even “common” ones. Your ToR should be short, concise but comprehensive, and easy to understand—generally following a Grade 8 reading level (modern standard).\nThe next section consists of an editable ToR document.\n\u000f\nTerms of Reference\n[Your team, group, council, or committee name]\nBackground\nIn this section, you should provide the Membership with background information about the project, study, or undertaking.\nWhat are the basics of the initiative?\nWhen did it begin?\nWhy is it happening?\nWhere will it happen?\nWho is funding it?\nWhat is the question or problem being addressed?\nWho else would have an interest in the project?\nDefinitions\nPatient and public members may not understand some of the terms used to discuss the initiative (e.g., clinical trial, CIHR, atherosclerosis, intersectionality, working group). Technical terms should always be explained in “lay” or easy-to-understand language. A “Definitions” section can help clarify the more technical term and acronyms that are integral to the project.\nExample: Consider the broad, inclusive definition of “patient” given by the Canadian Institutes of Health Research (CIHR).\nPatient: An overarching term inclusive of individuals with personal experience of a health issue and informal caregivers, including family and friends. \u0013 HYPERLINK \"http://www.cihr-irsc.gc.ca/e/48413.html\" \\l \"a4\" \u0014http://www.cihr-irsc.gc.ca/e/48413.html#a4\u0015\nThis definition could be altered by the actual committee or group members to best suit everyone; for example,\nPatients: Individuals with personal experience of a health situation, and informal caregivers, including family and friends.\nPurpose\nThis ToR serves as the guiding document for [GROUP NAME]. The goals for [THIS GROUP] are to\ndevelop?\nguide?\nadvise?\nprovide?\nannounce?\nother?\nMembers will engage in\nadvising?\nIdentifying priorities?\nbrainstorming?\nproviding feedback?\nreviewing documents?\ndeveloping protocols?\ncollecting and analyzing data?\nconnecting with other stakeholders?\napproving activities or documents?\nother?\nMembership\n[THIS GROUP] consists of [how many people do you ideally want?] members. The patient / public members\nare diverse with respect to their age, sex / gender, geographical locale, ethnicity, health experiences, work, cultural and educational backgrounds, and volunteer / caregiver experiences, as appropriate to the project.\nopenly and candidly share their ideas with [GROUP].\nrespect the opinions and time of others.\nStepping Down\nWhat happens when members want to step down? How are patient / public members replaced?\nNote: In the case of research, the foundational group of researchers should be part of the final research team, along with patient / public members and other stakeholders, such as those dealing with policy. Having researchers, clinicians, and patient / public members working together from the start makes for more meaningful engagement and improved learning opportunities for all.\n","cbCaigRbFDBXpDjb","https://ap.wps.com/l/cbCaigRbFDBXpDjb","docx",74791,7,"English","# Terms of Reference\n## Background\n## Definitions\n## Purpose\n## Membership\n## Stepping Down\n## Confidentiality\n## Expectations: Meeting Attendance, Time Commitment, Etc.\n## Decision Making","[{\"question\":\"What is the purpose of a Terms of Reference (ToR) document in this template?\",\"answer\":\"It serves as the overarching guiding document for the group’s membership. It provides background, sets goals and expectations, and acts as a reference for how the group will function.\"},{\"question\":\"Why does the template recommend using plain language and explaining acronyms?\",\"answer\":\"It aims to ensure patient and public members can understand the initiative. Technical terms and even common acronyms should be explained in lay, easy-to-understand language.\"},{\"question\":\"What key elements about membership and engagement does the template include?\",\"answer\":\"It covers member composition and diversity, how members are expected to share ideas and respect others’ time, and processes for advising, identifying priorities, reviewing documents, collecting and analyzing data, and connecting with stakeholders.\"},{\"question\":\"How does the template address confidentiality and meeting expectations?\",\"answer\":\"It specifies trust and confidentiality expectations, including how emails are shared and whether meeting information must be kept confidential. It also details attendance commitments, agenda distribution, preparation time, meeting conduct, minutes/notes, meeting length, and compensation/reimbursement considerations.\"}]","Terms of Reference - ToR Template - May 2018 - v2.0 | DOCX",1788135588]