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The paper explains how the GDPR provides multiple bases for research contexts, focusing on consent, public interest, and legitimate interest. It analyzes the practical choice between consent and public or legitimate grounds, using the Clinical Trial Regulation as an illustrative comparison. 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It frames processing as a task carried out in the public interest, with informed consent to participate still required.","https://schema.org",{"og:url":78,"og:type":120,"og:title":59,"og:site_name":91,"og:description":61},"article",{"robots":122,"canonical":78},"index,follow",{"doc_id":124,"site_id":56},282581,1790020787,{"code":4,"msg":5,"data":127},{"doc_id":124,"user_id":128,"nickname":88,"user_avatar":129,"doc_module":9,"category_id":40,"category_name":41,"doc_title":59,"doc_description":61,"doc_content":130,"file_id":131,"file_url":132,"file_type":133,"file_size":134,"view_count":8,"is_deleted":4,"is_public":9,"is_downloadable":9,"audit_status":9,"page_count":135,"language":136,"language_code":57,"site_id":56,"html_lang":57,"table_of_contents":137,"faqs":138,"seo_title":139,"seo_description":61,"update_tm":140,"read_time":79},2336478940917,"https://ap-avatar.wpscdn.com/davatar_6f874abed73319feea01a86fa6f0fab8","A CLARIN Contractual Framework for Sharing Personal Data for Scientific Research  \nKrister Lindén  \nUniversity of Helsinki Finland  \nkrister .linden@ [helsinki.fi](helsinki.fi)  \nAleksei Kelli  \nUniversity of Tartu Estonia  \n[aleksei.kelli@ut.ee](aleksei.kelli@ut.ee)  \nAlexandros Nousias  \nNousias/Linardos Business & Legal Consultants  \nalexandros .nousias@ [gmail.com](gmail.com)  \nAbstract  \nThe development and use of language resources often involve the processing of personal data. Processing has to have a legal ground. The General Data Protection Regulation (GDPR) provides several legal grounds. In the context of scientific research, Consent, Public interest and Legitimate interest are relevant. The main question is when researchers should rely on Consent and when on Public or Legitimate interest to conduct research. All three grounds have their advantages and challenges. For comparing Consent and Public interest, the Clinical Trial Regulation is used as an example. In addition, we study how this has been implemented in Finland based on the guidelines for research data from the Data Protection Ombudsman and suggest an update of the CLARIN Deposition License Agreement templates to accommodate data sets with personal data.  \n1 Introduction  \nLanguage resources (LRs) contain material subject to various legal regimes. For instance, they may contain copyright protected works, objects of related rights (performances) and personal data. This affects the way language resources are collected and used. Intellectual property issues relating to language resources have previously been addressed by Kelli et al. (2016) . The general approach to dealing with personal data1 in research is outlined by Kelli et al. (2019), where they discuss how processing2 personal data without consent (see also Klavan et al. 2018) as the legal basis is possible in various EU countries.  \nPersonal data issues are relevant for language resources, given that they potentially contain oral speech or written text, which relate to a natural person.3 According to the Charter of Fundamental Rights of the European Union (Charter 2012)“Everyone has the right to the protection ofpersonal data concerning him or her”(Art. 8 (1)) . The general framework for personal data protection is provided in the General Data Protection Regulation4 (GDPR) . This paper primarily outlines the regulatory framework for processing personal data for research purposes. Special attention is given to the legal grounds for processing for research purposes.  \n1 The General Data Protection Regulation defines personal data as “any information relating to an identified or identifiable natural person (‘data subject’)”(Art. 4 (1)) .  \n2 Processing is defined as “any operation or set of operations which is performed on personal data or on sets of personal data, whether or not by automated means, such as collection, recording, organisation, structuring, storage, adaptation or alteration, retrieval, consultation, use, disclosure by transmission, dissemination or otherwise making available, alignment or combination, restriction, erasure or destruction”(Art. 4 (2)) .  \n3 It should be emphasised that in case data is anonymised then data protection laws do not apply (see recital 26 of GDPR). For further discussion on anonymisation techniques, see WP29 2014.  \n4 The GDPR is applicable in all EU Member States from 25 May 2018. It replaces the (Data Protection Directive) .  \nThis work is licenced under a Creative Commons Attribution 4.0 International Licence. Licence details: [http://](http://)[ ](http://)[creativecommons.org/licenses/by/4.0/](creativecommons.org/licenses/by/4.0/)  \nKrister Lindén, Aleksei Kelli and Alexandros Nousias 2020 . A CLARIN Contractual Framework for Sharing Personal Data for Scienti􀀂c Research. Selected papers from the CLARIN Annual Conference 2019 . Linköping Electronic Conference Proceedings 172: 172 75–84 .  \nThe Charter of Fundamental Rights of the European Union foresees that pe","cbCaibIn7JVuVxCh","https://ap.wps.com/l/cbCaibIn7JVuVxCh","pdf",380785,10,"English","# Introduction\n## The GDPR and personal data in research\n## Legal grounds: consent, public interest, legitimate interest\n## Consent vs public interest using clinical trials\n## Implementation in Finland and CLARIN template updates","[{\"question\":\"Why is a legal ground required when processing personal data in language-resource research?\",\"answer\":\"Processing personal data must be based on a legal ground under the GDPR. Scientific research contexts determine which bases are applicable and how responsibilities are handled.\"},{\"question\":\"What legal bases does the paper focus on for research under the GDPR?\",\"answer\":\"The paper focuses on consent and public interest research, while also referencing conditions for using legitimate interest. It compares their advantages and challenges.\"},{\"question\":\"How is the Clinical Trial Regulation used to compare consent and public interest?\",\"answer\":\"The Clinical Trial Regulation serves as an example to contrast when researchers rely on consent versus public or legitimate interest. It frames processing as a task carried out in the public interest, with informed consent to participate still required.\"}]","A CLARIN Contractual Framework for Sharing Personal Data for Scientific Research - Legal Grounds and GDPR vs Consent | PDF",1789577772]