[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"doc-seo-307078-105":3,"detail-sidebar-cat-1-en-105":81,"doc-detail-307078-en":127},{"code":4,"msg":5,"data":6},0,"ok",{"site_id":7,"language":8,"slug":9,"title":10,"keywords":11,"description":12,"schema_data":13,"social_meta":74,"head_meta":76,"extra_data":78,"updated_unix":80},105,"en","2024-rare-disease-day-fund-application-guidelines","2024 Rare Disease Day Fund - Application Guidelines","","2024 Rare Disease Day Fund application guidelines outline GlobalSkin’s first-time grant offering to support GlobalSkin Members’ Rare Disease Day campaign efforts. The program aims to raise public and decision-maker awareness of rare diseases and their impact on patients. Grants up to $700 CAD can fund marketing materials or Rare Disease Day-related events. Applications are accepted from Dec 4–17, 2023, with decisions by Dec 20 and final eligibility and exclusion criteria.",{"@graph":14,"@context":73},[15,34,56],{"@type":16,"itemListElement":17},"BreadcrumbList",[18,23,27,31],{"item":19,"name":20,"@type":21,"position":22},"https://docshare.wps.com","Home","ListItem",1,{"item":24,"name":25,"@type":21,"position":26},"https://docshare.wps.com/template/","Template",2,{"item":28,"name":29,"@type":21,"position":30},"https://docshare.wps.com/template/forms/","Forms",3,{"item":32,"name":10,"@type":21,"position":33},"https://docshare.wps.com/template/2024-rare-disease-day-fund-application-guidelines/307078/",4,{"url":32,"name":10,"@type":35,"image":36,"author":41,"headline":10,"publisher":44,"fileFormat":47,"inLanguage":8,"description":12,"dateModified":48,"datePublished":49,"encodingFormat":47,"isAccessibleForFree":50,"interactionStatistic":51},"DigitalDocument",{"url":37,"@type":38,"width":39,"height":40},"https://docshare.wps.com/thumbnails/2024-rare-disease-day-fund-application-guidelines/307078.png","ImageObject",442,249,{"name":42,"@type":43},"Alex Sinclair","Person",{"url":19,"name":45,"@type":46},"DocShare","Organization","application/pdf","2026-10-23","2026-09-19",true,{"@type":52,"interactionType":53,"userInteractionCount":55},"InteractionCounter",{"@type":54},"ViewAction",7,{"@type":57,"mainEntity":58},"FAQPage",[59,65,69],{"name":60,"@type":61,"acceptedAnswer":62},"Who can apply for the 2024 Rare Disease Day Fund?","Question",{"text":63,"@type":64},"GlobalSkin Full or Associate Member organizations that support patients living with a rare skin disease. Affiliate Members are not eligible.","Answer",{"name":66,"@type":61,"acceptedAnswer":67},"What activities can grant funding support?",{"text":68,"@type":64},"Funding can support marketing material development/purchase to raise awareness, and event planning for virtual or in-person Rare Disease Day activities such as webinars, expert sessions, and e-learning.",{"name":70,"@type":61,"acceptedAnswer":71},"What reporting is required if a proposal is funded?",{"text":72,"@type":64},"Within two weeks of Rare Disease Day, applicants must provide a Grant Payment Form and a completed Rare Disease Day Report Form with evidence of spending, images, and data on event impact such as participants and social media reach.","https://schema.org",{"og:url":32,"og:type":75,"og:title":10,"og:site_name":45,"og:description":12},"article",{"robots":77,"canonical":32},"index,follow",{"doc_id":79,"site_id":7},307078,1791144133,{"code":4,"msg":82,"data":83},"success",[84,89,94,99,104,109,113,118,123],{"id":85,"doc_module":22,"doc_module_name":25,"category_name":86,"show_sort_weight":87,"slug":88},11,"Presentations",90,"presentations",{"id":90,"doc_module":22,"doc_module_name":25,"category_name":91,"show_sort_weight":92,"slug":93},12,"Resumes",80,"resumes",{"id":95,"doc_module":22,"doc_module_name":25,"category_name":96,"show_sort_weight":97,"slug":98},14,"Invoices",70,"invoices",{"id":100,"doc_module":22,"doc_module_name":25,"category_name":101,"show_sort_weight":102,"slug":103},15,"Posters",60,"posters",{"id":105,"doc_module":22,"doc_module_name":25,"category_name":106,"show_sort_weight":107,"slug":108},16,"Social Media",50,"social-media",{"id":110,"doc_module":22,"doc_module_name":25,"category_name":29,"show_sort_weight":111,"slug":112},17,40,"forms",{"id":114,"doc_module":22,"doc_module_name":25,"category_name":115,"show_sort_weight":116,"slug":117},18,"Letters",30,"letters",{"id":119,"doc_module":22,"doc_module_name":25,"category_name":120,"show_sort_weight":121,"slug":122},21,"Paper Templates",5,"papers-templates",{"id":124,"doc_module":22,"doc_module_name":25,"category_name":125,"show_sort_weight":4,"slug":126},158,"General","general-158",{"code":4,"msg":82,"data":128},{"doc_id":79,"user_id":129,"nickname":42,"user_avatar":130,"doc_module":22,"category_id":110,"category_name":29,"doc_title":10,"doc_description":12,"doc_content":131,"file_id":132,"file_url":133,"file_type":134,"file_size":135,"view_count":55,"is_deleted":4,"is_public":22,"is_downloadable":22,"audit_status":22,"page_count":26,"language":136,"language_code":8,"site_id":7,"html_lang":8,"table_of_contents":137,"faqs":138,"seo_title":139,"seo_description":12,"update_tm":140,"read_time":22},1099523882182,"https://ap-avatar.wpscdn.com/davatar_6f874abed73319feea01a86fa6f0fab8","2024 Rare Disease Day Fund  \nApplication Guidelines  \nThis year, GlobalSkin is offering grants for the first time to support our Members’ 2024 Rare Disease Day campaign efforts. Rare Disease Day is the official international awareness-raising campaign for rare diseases which takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.  \nWe invite grant applications from Full and Associate Member organizations that demonstrate how they will raise awareness of their rare disease(s), support their patients, and strengthen the work of their organizations.  \nProposals that fall into one or both of the following categories can be funded up to $700 CAD.  \nMarketing: Grants funded in this category will support the development and/or purchase of marketing materials that raise awareness of the activities you have planned for Rare Disease Day. Examples of activities that could be funded include paid social media, traditional media buying, graphic design and printing materials such as flyers or brochures.  \nEvent Planning: Grants funded in this category will support hosting activities related to Rare Disease Day. Activities can include virtual and in-person events. Examples of activities that could be funded include webinars, ask-the-expert sessions, e-learning opportunities, and town hall events. Funds can be used towards the cost of using online meeting/presentation platforms or in-person events.  \nApplication Intake: December 4, 2023 – December 17, 2023  \nPlease note that GlobalSkin will approve a limited number of applications. Applicants will be informed of the decision by Wednesday, December 20, 2023.  \nPlease note the following terms and conditions:  \n1. Applications must be submitted by 11:59 pm ET on Sunday, December 17, 2023  \n2. All applicants will receive GlobalSkin's funding decision by Wednesday, December 20, 2023  \n3. GlobalSkin will review and approve or decline all applications. All funding decisions are final  \n4. Only one application per GlobalSkin Member organization will be funded in 2024  \n5. This fund offers reimbursement grants to be paid after Rare Disease Day  \nApplication Criteria:  \n1. Applicant is a GlobalSkin Full or Associate Member (Affiliate Members do not qualify to apply to the GlobalSkin Rare Disease Day Fund as they are not patient-led dermatology organizations)  \n2. Applicant is a GlobalSkin Member that supports patients living with a rare skin disease  \n3. Project aligns with Rare Disease Day Fund categories  \n4. Project raises awareness and builds community  \n5. Project reporting must be submitted following the completion of your project to receive funding  \n6. Project does not violate any of the exclusions outlined below  \nExclusions:  \n1. Funds may not be used to pay for meals for healthcare providers or policymakers  \n2. Funds may not be used to purchase alcohol  \n3. Funds may not be used for items for which a receipt cannot be issued  \n4. Funds may not be used to cover costs of travel for individuals, but may be used to support the attendance of patient community members to in-person events hosted by your Member organization  \n5. Funds may not be used to provide honoraria or any other type of payment to healthcare providers or policymakers  \nReporting:  \nIf your proposal is funded, we will need to see evidence of how you used your funds before distributing reimbursement. Within two weeks of Rare Disease Day, we will ask you to provide us:  \n1. A Grant Payment Form (template provided by GlobalSkin) totaling the pre-approved grant amount  \n2. A completed Rare Disease Day Report Form (provided by GlobalSkin) . This report will include, but is not limited to:  \n· A short narrative summary of how the funds were spent  \n· Images of how the funds were used (e.g., screenshots of social media, advertising materials, YouTube video, etc. )  \n· Data showing e","cbCaiaihAqpR4KMq","https://ap.wps.com/l/cbCaiaihAqpR4KMq","pdf",151274,"English","# Application Guidelines\n## Campaign objectives and eligible applicants\n## Funding categories and amounts\n## Application intake and decision timeline\n## Terms, conditions, and limits\n## Application criteria\n## Exclusions\n## Reporting requirements","[{\"question\":\"Who can apply for the 2024 Rare Disease Day Fund?\",\"answer\":\"GlobalSkin Full or Associate Member organizations that support patients living with a rare skin disease. Affiliate Members are not eligible.\"},{\"question\":\"What activities can grant funding support?\",\"answer\":\"Funding can support marketing material development/purchase to raise awareness, and event planning for virtual or in-person Rare Disease Day activities such as webinars, expert sessions, and e-learning.\"},{\"question\":\"What reporting is required if a proposal is funded?\",\"answer\":\"Within two weeks of Rare Disease Day, applicants must provide a Grant Payment Form and a completed Rare Disease Day Report Form with evidence of spending, images, and data on event impact such as participants and social media reach.\"}]","2024 Rare Disease Day Fund - Application Guidelines | PDF",1789843822]