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Ethnographic techniques and a phenomenological approach guide data collection and analysis of 63 interviews with formal dementia care providers and older adults in northern rural Minnesota. Using QSR NVivo, findings highlight socio-cultural and environmental factors and ADRD care accessibility as cross-cutting themes. Home, clinic, and community needs reveal barriers, opportunities, and policy requirements, including technology at home, education in clinics, and addressing community spatial isolation. Community-centered perspectives identify gaps and actionable strategies.",{"@graph":69,"@context":123},[70,84,106],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":35,"@type":76,"position":81},"https://docshare.wps.com/document/healthcare/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/unraveling-the-rural-lived-experience-with-dementia-pathways-to-improved-care-abstract/426020/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/unraveling-the-rural-lived-experience-with-dementia-pathways-to-improved-care-abstract/426020.png","ImageObject",300,407,{"name":92,"@type":93},"Aditya","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-10-20","2026-09-28",true,{"@type":102,"interactionType":103,"userInteractionCount":105},"InteractionCounter",{"@type":104},"ViewAction",11,{"@type":107,"mainEntity":108},"FAQPage",[109,115,119],{"name":110,"@type":111,"acceptedAnswer":112},"What is the purpose of this study on rural dementia care?","Question",{"text":113,"@type":114},"The study aims to collect and analyze data on the lived experience of dementia in rural communities to guide appropriate program development and interventions.","Answer",{"name":116,"@type":111,"acceptedAnswer":117},"How was data collected and from whom?",{"text":118,"@type":114},"Researchers conducted 63 interviews with formal dementia care providers and community-dwelling older adults in northern rural Minnesota.",{"name":120,"@type":111,"acceptedAnswer":121},"What key themes were identified to improve care?",{"text":122,"@type":114},"Findings emphasize socio-cultural and environmental aspects of rural spaces and ADRD care accessibility as cross-cutting themes, informing needs and barriers across the home, clinic, and community.","https://schema.org",{"og:url":83,"og:type":125,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":127,"canonical":83},"index,follow",{"doc_id":129,"site_id":62},426020,1790767297,{"code":4,"msg":5,"data":132},{"doc_id":129,"user_id":133,"nickname":92,"user_avatar":134,"doc_module":4,"category_id":34,"category_name":35,"doc_title":65,"doc_description":67,"doc_content":135,"file_id":136,"file_url":137,"file_type":138,"file_size":139,"view_count":105,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":14,"language":140,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":141,"faqs":142,"seo_title":143,"seo_description":67,"update_tm":144,"read_time":24},962085564549,"https://ap-avatar.wpscdn.com/davatar_085a072bc5b1113ac321206ff7593b45","Innovation in Aging, 2025, Vol. 9, No. S2 467  \nAbstract citation ID: igaf122.1597  \nUNRAVELING THE RURAL LIVED EXPERIENCE WITH DEMENTIA: PATHWAYS TO IMPROVED CARE.  \nJoshua Fergen1, Dana Ketcher1, Melinda Dertinger1,  \nKelsie Larson2, Kirsten Cruikshank2, Amy Otto2, Wayne Warry1, and Kristen Jacklin1, 1. University of Minnesota Medical School, Duluth Campus, Duluth, Minnesota, United States, 2. University of Minnesota Medical School Memory Keepers Medical Discovery Team, Duluth, Minnesota, United States  \nThis study describes findings from a qualitative, community-based participatory research project with rural communities. Using ethnographic techniques and a phenomenological approach, our aim was to collect and analyze data focused on the lived experience of dementia in rural communities to inform appropriate program development and interventions. Community-based researchers conducted 63 interviews with formal dementia care providers and community-dwelling older adults in northern rural Minnesota. Data were organized and analyzed using QSR NVivo. Findings identify the socio-cultural and environmental aspects of rural spaces, along with rural Alzheimer’s disease and related dementias (ADRD) care  \n468 Innovation in Aging, 2025, Vol. 9, No. S2  \naccessibility, as cross-cutting themes to guide a socio-ecological model of care. Results provide insight into needs, barriers and opportunities at the level of the home, clinic and community, that require policy intervention across those three levels. For example, technological solutions in the home, dementia education in the clinic, and addressing spatial isolation in the community.  \nCentering community voices and perspectives revealed gaps in our understanding how rural contexts shape community experiences with ADRD, which can inform actionable strategies and interventions. Results from this study identify the need for educational interventions and clinical approaches to improve care, unique challenges and adaptations that could facilitate aging in place, and assets in rural communities that can support persons living with dementia and their caregivers. These results can be used to create highly tailored programming, interventions, and policies for rural populations that are impacted by ADRD.","cbCaiqEbSxDRKuSy","https://ap.wps.com/l/cbCaiqEbSxDRKuSy","pdf",871515,"English","# Study aim and approach\n## Participants and data collection\n## Analysis method\n## Findings: themes and implications\n## Actionable strategies and policy needs","[{\"question\":\"What is the purpose of this study on rural dementia care?\",\"answer\":\"The study aims to collect and analyze data on the lived experience of dementia in rural communities to guide appropriate program development and interventions.\"},{\"question\":\"How was data collected and from whom?\",\"answer\":\"Researchers conducted 63 interviews with formal dementia care providers and community-dwelling older adults in northern rural Minnesota.\"},{\"question\":\"What key themes were identified to improve care?\",\"answer\":\"Findings emphasize socio-cultural and environmental aspects of rural spaces and ADRD care accessibility as cross-cutting themes, informing needs and barriers across the home, clinic, and community.\"}]","UNRAVELING THE RURAL LIVED EXPERIENCE WITH DEMENTIA: PATHWAYS TO IMPROVED CARE - Abstract | PDF",1790639127]