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This qualitative study documents adolescents’ and caregivers’ lived experiences of physical activity within the context of SCD and chronic pain to guide intervention development. Findings identify key facilitators, barriers, and perceived benefits informing individualized targets.",{"@graph":69,"@context":126},[70,84,105],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":35,"@type":76,"position":81},"https://docshare.wps.com/document/healthcare/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/physical-activity-among-adolescents-and-young-adults-living-with-chronic-pain-and-sickle-cell-disease-qualitative-examination/409129/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/physical-activity-among-adolescents-and-young-adults-living-with-chronic-pain-and-sickle-cell-disease-qualitative-examination/409129.png","ImageObject",300,407,{"name":92,"@type":93},"Ivy","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-10-29","2026-09-28",true,{"@type":102,"interactionType":103,"userInteractionCount":34},"InteractionCounter",{"@type":104},"ViewAction",{"@type":106,"mainEntity":107},"FAQPage",[108,114,118,122],{"name":109,"@type":110,"acceptedAnswer":111},"What was the objective of the study?","Question",{"text":112,"@type":113},"To describe adolescent- and caregiver-centered lived experiences of physical activity in the context of SCD and chronic pain and to inform intervention targets.","Answer",{"name":115,"@type":110,"acceptedAnswer":116},"How were participants recruited and what method was used?",{"text":117,"@type":113},"Adolescents aged 12–18 with any SCD genotype and moderate-or-higher risk of chronic pain were recruited at two sites. Semi-structured interviews were analyzed using a deductive-inductive approach framed by the Fear Avoidance Model.",{"name":119,"@type":110,"acceptedAnswer":120},"What factors facilitated or hindered physical activity?",{"text":121,"@type":113},"Facilitators included structured social activities and older age. Barriers included triggering or worsening pain and caregivers’ and adults’ safety concerns.",{"name":123,"@type":110,"acceptedAnswer":124},"What benefits did physical activity provide for pain management?",{"text":125,"@type":113},"Physical activity was associated with minimizing stiffness and pain exacerbation, along with sustained reductions in pain.","https://schema.org",{"og:url":83,"og:type":128,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":130,"canonical":83},"index,follow",{"doc_id":132,"site_id":62},409129,1790729818,{"code":4,"msg":5,"data":135},{"doc_id":132,"user_id":136,"nickname":92,"user_avatar":137,"doc_module":4,"category_id":34,"category_name":35,"doc_title":65,"doc_description":67,"doc_content":138,"file_id":139,"file_url":140,"file_type":141,"file_size":142,"view_count":34,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":44,"language":143,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":144,"faqs":145,"seo_title":146,"seo_description":67,"update_tm":147,"read_time":148,"preview_page_count":4},549758252649,"https://ap-avatar.wpscdn.com/avatar/8000253669c5317157?_k=1778319167496531819","Physical activity among adolescents and young adults living with chronic pain and sickle cell disease: a qualitative examination  \nJan T. Mooney , 1,2 PHD, Cynthia Sinha,1 PHD, Nitya Bakshi,3 MBBS, Anjanette Nu~nez,4 DPT,  \nTaylor Adkins,1 MBA, Staci Thomas,5 MS, Katie Beasley,5 BA, Tinu Akintobi,5 BS, Lori Crosby ,5 PSYD, Susmita Kashikar-Zuck,5 PHD, Carlton Dampier,1,2 MD, Gregory D. Myer,6,7 PHD, Trisha Kesar,4 PHD, Charles T. Quinn,5 MD, MS,  \nSoumitri Sil , 1,2, 􀀃 PHD, ABPP  \n1 Department of Pediatrics, Emory University School of Medicine, Atlanta, GA, United States  \n2Aflac Cancer and Blood Disorders Center, Children’s Healthcare of Atlanta, Atlanta, GA, United States 3 Department of Pediatrics, Yale University School of Medicine, New Haven, CT, United States 4 Department of Rehabilitation Medicine, Emory University School of Medicine, Atlanta, GA, United States  \n5Cincinnati Children’s Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, United States 6 Department of Orthopaedics, Emory University School of Medicine, Atlanta, GA, United States  \n7 Emory Sports Performance and Research Center, Flowery Branch, GA, United States  \n􀀃 Corresponding author: Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, 2220 North Druid Hills Road NE, CL. 14224, Atlanta, GA 30329, United States. Email: [soumitri.sil@emory.edu](soumitri.sil@emory.edu).  \nAbstract  \nObjectives: Chronic pain among youth with sickle cell disease (SCD) is associated with significant functional disability. Physical activity is recommended for pediatric chronic pain and is safe, feasible, and beneficial for individuals with SCD, yet uptake is limited. This study describes the adolescent- and caregiver-centered lived experience of physical activity within the context of SCD and chronic pain to inform intervention targets.  \nMethods: Adolescents aged 12–18 years with any SCD genotype and medium or greater risk of chronic pain (Pediatric Pain Screening Tool) were recruited across two sites for an intervention development study. Semi-structured interviews elicited perspectives related to physical activity and its role in pain management. A deductive-inductive approach was used with the Fear Avoidance Model as an analytic framework. Results: Adolescents (n ¼ 12; 15.1 ± 1.5 years) were Black/African American, even sex distribution, with 92% Medicaid-covered. Caregivers (n ¼ 12; 39.4 ± 5.8 years) were Black/African American, and 100% were mothers/stepmothers. Physical activity facilitators included structured social activities and older age. Barriers included triggering or worsening pain and safety concerns expressed by caregivers and adults. Caregivers emphasized that adolescents developing self-awareness helps them modify physical activity to prevent pain. Benefits of physical activity to manage pain included minimizing stiffness and pain exacerbation and sustained pain reduction.  \nConclusions: Physical activity to manage chronic SCD pain may require individualization and adaptation to address patient and caregiver concerns. Future intervention targets need to address unique facilitators and barriers, minimize challenges, and promote benefits of physical activity for chronic SCD pain.  \nKeywords: sickle cell disease, physical activity, adolescents, young adults, qualitative.  \nSickle cell disease (SCD) is a family of rare genetic disorders of the hemoglobin affecting approximately 100,000 individuals in the United States, predominantly of African descent. Chronic pain in SCD, defined as pain on most days for 6 or more months, can begin during adolescence, affects 􀀘 20% of youth, and contributes to pain-related functional impairments in daily activities, low rates of school attendance, limited social functioning, and diminished health-related quality of life (Dampier et al., 2017; Poku et al., 2018). These disruptions to daily functioning may be attributed to multiple contributors, including physical inactivit","cbCaiomIlMMJ826N","https://ap.wps.com/l/cbCaiomIlMMJ826N","pdf",738898,"English","# Abstract\n## Objectives\n## Methods\n## Results\n## Conclusions\n# Keywords","[{\"question\":\"What was the objective of the study?\",\"answer\":\"To describe adolescent- and caregiver-centered lived experiences of physical activity in the context of SCD and chronic pain and to inform intervention targets.\"},{\"question\":\"How were participants recruited and what method was used?\",\"answer\":\"Adolescents aged 12–18 with any SCD genotype and moderate-or-higher risk of chronic pain were recruited at two sites. Semi-structured interviews were analyzed using a deductive-inductive approach framed by the Fear Avoidance Model.\"},{\"question\":\"What factors facilitated or hindered physical activity?\",\"answer\":\"Facilitators included structured social activities and older age. Barriers included triggering or worsening pain and caregivers’ and adults’ safety concerns.\"},{\"question\":\"What benefits did physical activity provide for pain management?\",\"answer\":\"Physical activity was associated with minimizing stiffness and pain exacerbation, along with sustained reductions in pain.\"}]","Physical activity among adolescents and young adults living with chronic pain and sickle cell disease - qualitative examination | PDF",1790581433,23]