[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"doc-seo-297561-105":3,"detail-sidebar-cat-0-en-105":81,"doc-detail-297561-en":130},{"code":4,"msg":5,"data":6},0,"ok",{"site_id":7,"language":8,"slug":9,"title":10,"keywords":11,"description":12,"schema_data":13,"social_meta":74,"head_meta":76,"extra_data":78,"updated_unix":80},105,"en","media-relations-policy-tuberous-sclerosis-association-tsa","Media Relations Policy - Tuberous Sclerosis Association (TSA)","","Media relations policy outlining how the Tuberous Sclerosis Association (TSA) handles media queries across all response types, including “off the record” and anonymous statements. Establishes that staff must consult the Senior Management Team before responding, route enquiries through internal coordination, and typically use a designated TSA spokesperson. Defines principles for timely, accurate messaging, appropriate tone, and encouraged media engagement. Includes data protection and privacy safeguards and board approval and review dates.",{"@graph":14,"@context":73},[15,34,56],{"@type":16,"itemListElement":17},"BreadcrumbList",[18,23,27,31],{"item":19,"name":20,"@type":21,"position":22},"https://docshare.wps.com","Home","ListItem",1,{"item":24,"name":25,"@type":21,"position":26},"https://docshare.wps.com/document/","Document",2,{"item":28,"name":29,"@type":21,"position":30},"https://docshare.wps.com/document/research-report/","Research & Report",3,{"item":32,"name":10,"@type":21,"position":33},"https://docshare.wps.com/document/media-relations-policy-tuberous-sclerosis-association-tsa/297561/",4,{"url":32,"name":10,"@type":35,"image":36,"author":41,"headline":10,"publisher":44,"fileFormat":47,"inLanguage":8,"description":12,"dateModified":48,"datePublished":49,"encodingFormat":47,"isAccessibleForFree":50,"interactionStatistic":51},"DigitalDocument",{"url":37,"@type":38,"width":39,"height":40},"https://docshare.wps.com/thumbnails/media-relations-policy-tuberous-sclerosis-association-tsa/297561.png","ImageObject",300,407,{"name":42,"@type":43},"Gloria","Person",{"url":19,"name":45,"@type":46},"DocShare","Organization","application/pdf","2026-11-08","2026-09-18",true,{"@type":52,"interactionType":53,"userInteractionCount":55},"InteractionCounter",{"@type":54},"ViewAction",9,{"@type":57,"mainEntity":58},"FAQPage",[59,65,69],{"name":60,"@type":61,"acceptedAnswer":62},"Who is allowed to respond to a media enquiry for TSA?","Question",{"text":63,"@type":64},"No TSA staff member should respond without first consulting the Senior Management Team (SMT). Enquiries are then referred to SMT for further discussion before any response is made.","Answer",{"name":66,"@type":61,"acceptedAnswer":67},"What should staff do when a media enquiry comes via the telephone switchboard or TSA Support Line?",{"text":68,"@type":64},"Staff should take details of the enquiry and the individual’s contact details, confirm internally that it will be discussed, and share a response as soon as feasible.",{"name":70,"@type":61,"acceptedAnswer":71},"How does the policy address privacy and data protection in media engagement?",{"text":72,"@type":64},"No private data or information will be shared with the media or other third parties when there is a data protection or GDPR concern. Privacy and confidentiality enquiries must be directed to the TSA privacy policy and the TSA Support line confidentiality statement.","https://schema.org",{"og:url":32,"og:type":75,"og:title":10,"og:site_name":45,"og:description":12},"article",{"robots":77,"canonical":32},"index,follow",{"doc_id":79,"site_id":7},297561,1790763362,{"code":4,"msg":82,"data":83},"success",[84,88,92,96,101,106,111,115,119,122,126],{"id":22,"doc_module":4,"doc_module_name":25,"category_name":85,"show_sort_weight":86,"slug":87},"Story & Novel",90,"story-novel",{"id":26,"doc_module":4,"doc_module_name":25,"category_name":89,"show_sort_weight":90,"slug":91},"Literature",80,"literature",{"id":33,"doc_module":4,"doc_module_name":25,"category_name":93,"show_sort_weight":94,"slug":95},"Exam",70,"exam",{"id":97,"doc_module":4,"doc_module_name":25,"category_name":98,"show_sort_weight":99,"slug":100},5,"Comic",60,"comic",{"id":102,"doc_module":4,"doc_module_name":25,"category_name":103,"show_sort_weight":104,"slug":105},6,"Technology",50,"technology",{"id":107,"doc_module":4,"doc_module_name":25,"category_name":108,"show_sort_weight":109,"slug":110},7,"Healthcare",40,"healthcare",{"id":112,"doc_module":4,"doc_module_name":25,"category_name":29,"show_sort_weight":113,"slug":114},8,30,"research-report",{"id":55,"doc_module":4,"doc_module_name":25,"category_name":116,"show_sort_weight":117,"slug":118},"Religion & Spirituality",20,"religion-spirituality",{"id":117,"doc_module":4,"doc_module_name":25,"category_name":120,"show_sort_weight":117,"slug":121},"World Cup","world-cup",{"id":123,"doc_module":4,"doc_module_name":25,"category_name":124,"show_sort_weight":123,"slug":125},10,"Lifestyle","lifestyle",{"id":127,"doc_module":4,"doc_module_name":25,"category_name":128,"show_sort_weight":97,"slug":129},19,"General","general",{"code":4,"msg":82,"data":131},{"doc_id":79,"user_id":132,"nickname":42,"user_avatar":133,"doc_module":4,"category_id":112,"category_name":29,"doc_title":10,"doc_description":12,"doc_content":134,"file_id":135,"file_url":136,"file_type":137,"file_size":138,"view_count":55,"is_deleted":4,"is_public":22,"is_downloadable":22,"audit_status":22,"page_count":26,"language":139,"language_code":8,"site_id":7,"html_lang":8,"table_of_contents":140,"faqs":141,"seo_title":142,"seo_description":12,"update_tm":143,"read_time":97,"preview_page_count":4},2336474459895,"https://ap-avatar.wpscdn.com/avatar/22000baeef7a5ed0655?x-image-process=image/resize,m_fixed,w_180,h_180&k=1786071322749376916","Media relations policy  \nThe Tuberous Sclerosis Association (TSA) is committed to an open policy on media relations and media engagement, as part of our focus on providing help for today and a cure for tomorrow for those affected by Tuberous Sclerosis Complex (TSC) .  \nAny media queries relating to any aspect of the TSA follow the following Policy on Media Relations. This policy covers all forms of responses to the media, including “off the record” and anonymous statements.  \nFirst response to enquiries  \n1. No TSA member of staff should respond to a media enquiry without consulting with the Senior Management Team (SMT) first, to ensure that our response is as helpful and comprehensive as possible  \n2. If a media enquiry is made through the telephone switchboard or TSA Support Line telephone number, the staff member should take details of the enquiry and contact details of the individual, and confirm with the individual that the enquiry will be discussed internally and a response shared as soon as we are able to do so  \nDeveloping a response and spokespeople  \n1. The TSA will try to respond to the media enquiry as quickly as is feasible, whilst also ensuring that all information is robust and up-to-date  \n2. All media enquiries are referred to SMT, for further discussion before a response is made. The Senior Management Team, other employees, Board Members or Specialist Advisors of the TSA as needed, will direct the process internally by which a response is made or position taken  \n3. To make media-charity engagement as straightforward as possible, a single TSA Spokesperson will usually be identified to engage with the media, following internal discussions  \n4. If follow-up questions regarding the enquiry are made and the TSA Spokesperson is not available, enquiries are to be referred to the charity’s Chief Executive, or a later date confirmed with the enquirer for the TSA Spokesperson to respond  \nThe TSA’s stance on media engagement  \n1. The TSA appreciates the support that we receive from journalists and broadcasters, and the media’s helpfulness helping in raising awareness of TSC  \n2. The media and its associated services are viewed by the TSA as valuable sources, and engagement with the media in all of its forms is encouraged. The TSA will aim to also be a valuable resource to the media on TSC and other associated issues  \n3. The TSA commits to maintaining a proper tone of voice and manner when speaking with the media  \nData protection and privacy  \n1. No private data or information will be shared with the media or any other third-parties when there is a data protection or General Data Protection Regulation (GDPR) concern  \n2. All enquiries regarding our privacy and confidentiality policies should be directed to:  \n•  TSA privacy policy  \n•  TSA Support line confidentiality statement  \nThis policy can be reviewed, amended, updated, at any time.  \nPolicy approved by Board: May 2021  \nPolicy due for review: May 2022","cbCaigViGQlZ83Ur","https://ap.wps.com/l/cbCaigViGQlZ83Ur","pdf",288145,"English","# First response to enquiries\n## Developing a response and spokespeople\n## The TSA’s stance on media engagement\n## Data protection and privacy","[{\"question\":\"Who is allowed to respond to a media enquiry for TSA?\",\"answer\":\"No TSA staff member should respond without first consulting the Senior Management Team (SMT). Enquiries are then referred to SMT for further discussion before any response is made.\"},{\"question\":\"What should staff do when a media enquiry comes via the telephone switchboard or TSA Support Line?\",\"answer\":\"Staff should take details of the enquiry and the individual’s contact details, confirm internally that it will be discussed, and share a response as soon as feasible.\"},{\"question\":\"How does the policy address privacy and data protection in media engagement?\",\"answer\":\"No private data or information will be shared with the media or other third parties when there is a data protection or GDPR concern. Privacy and confidentiality enquiries must be directed to the TSA privacy policy and the TSA Support line confidentiality statement.\"}]","Media Relations Policy - Tuberous Sclerosis Association (TSA) | PDF",1789745802]