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A community engagement study explored how Black women with fibroids (n=6) and Latinas without fibroids (n=7) experienced menstruation, symptoms, and treatment options. Participants reported silence and limited education about menstruation, contributing to normalization of painful symptoms, and felt dismissed when seeking alternative fibroid treatments. Findings emphasize the need for open communication among patients and healthcare providers.",{"@graph":69,"@context":126},[70,84,105],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":35,"@type":76,"position":81},"https://docshare.wps.com/document/healthcare/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/in-our-community-we-normalize-pain-discussions-around-menstruation-and-uterine-fibroids-with-black-women-and-latinas/331985/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/in-our-community-we-normalize-pain-discussions-around-menstruation-and-uterine-fibroids-with-black-women-and-latinas/331985.png","ImageObject",300,407,{"name":92,"@type":93},"Olivia Brown","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-10-28","2026-09-21",true,{"@type":102,"interactionType":103,"userInteractionCount":34},"InteractionCounter",{"@type":104},"ViewAction",{"@type":106,"mainEntity":107},"FAQPage",[108,114,118,122],{"name":109,"@type":110,"acceptedAnswer":111},"What problem does the study address about uterine fibroids and menstruation?","Question",{"text":112,"@type":113},"The study addresses disparities in uterine fibroids and the limited discussion and education about menstruation, particularly among Black women and Latinas, and how this affects symptom recognition and diagnosis timing.","Answer",{"name":115,"@type":110,"acceptedAnswer":116},"How were community engagement studios used in the study?",{"text":117,"@type":113},"The study used two virtual community engagement studios separated by uterine fibroid diagnosis. Discussions were not audio recorded, notes were taken by notetakers, and notes were thematically analyzed in Atlas.ti using content analysis.",{"name":119,"@type":110,"acceptedAnswer":120},"What did participants report about menstruation education and symptom normalization?",{"text":121,"@type":113},"Participants reported a lack of discussion about menstruation in home or school settings, especially around their first menstruation. This silence led many to normalize painful menstruation symptoms.",{"name":123,"@type":110,"acceptedAnswer":124},"Why does the paper call for more communication with healthcare providers?",{"text":125,"@type":113},"Even with a uterine fibroid diagnosis, silence around menstruation persists. The paper calls for increased discussion about menstruation and for conversations between healthcare providers and patients to explore appropriate treatment options, including options patients may be interested in.","https://schema.org",{"og:url":83,"og:type":128,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":130,"canonical":83},"index,follow",{"doc_id":132,"site_id":62},331985,1790908695,{"code":4,"msg":5,"data":135},{"doc_id":132,"user_id":136,"nickname":92,"user_avatar":137,"doc_module":4,"category_id":34,"category_name":35,"doc_title":65,"doc_description":67,"doc_content":138,"file_id":139,"file_url":140,"file_type":141,"file_size":142,"view_count":34,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":34,"language":143,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":144,"faqs":145,"seo_title":146,"seo_description":67,"update_tm":147,"read_time":148},16904993612988,"https://ap-avatar.wpscdn.com/davatar_a8503ba1806abce46bf441b54a3ca4cd","Orellana et al. BMC Women's Health (2024) 24:233 BMC Women's Health  \n[https://doi.org/10.1186/s12905-024-03008-z](https://doi.org/10.1186/s12905-024-03008-z)  \nRESEARCH Open Access  \n“In our community, we normalize pain”:  discussions around menstruation and uterine fibroids with Black women and Latinas  \nMinerva Orellana 1, Karen. N DSouza2, Jane Q. Yap3, Abhirami Sriganeshan4, M. Elena Jones5, Charis Johnson5, Megan Allyse3,6,7, Sateria Venable8, Elizabeth A. Stewart9,10, Felicity Enders3,10,11 and Joyce E. Balls-Berry5*  \nAbstract  \nBackground Uterine fibroids are non-cancerous neoplasms that arise from the uterus affecting over 75% of women. However, there is a disparity with Black women having an increased prevalence of nearly 80% . Black women also experience increased symptom burden, including younger age at the time of diagnosis and increased number and volume of fibroids. Less is known about other ethnoracially diverse women such as Latinas and the potential cultural impacts on fibroid burden and treatment.  \nMethods Community engagement studios were conducted to facilitate discussions with stakeholders on their uterine fibroid and menstruation experience. We recruited Black women (n = 6) diagnosed with uterine fibroids and Latinas (n = 7) without uterine fibroids. We held two virtual community engagement studios split by uterine fibroid diagnosis. The studios were not audio recorded and notes were taken by four notetakers. The notes were thematically analyzed in Atlas.ti using content analysis.  \nResults Participants felt there was a lack of discussion around menstruation overall, whether in the home or school settings. This lack of menstruation education was pronounced when participants had their first menstruation experience, with many unaware of what to expect. This silence around menstruation led to a normalization of painful menstruation symptoms. When it came to different treatment options for uterine fibroids, some women wanted to explore alternative treatments but were dismissed by their healthcare providers. Many participants advocated for having discussions with their healthcare provider about life goals to discuss different treatment options for their uterine fibroids.  \nConclusion Despite uterine fibroid diagnosis, there is silence around menstruation. Menstruation is a normal biological occurrence and needs to be discussed to help prevent delayed diagnosis of uterine fibroids and possibly other gynecological disorders. Along with increased discussions around menstruation, further discussion is needed between healthcare providers and uterine fibroid patients to explore appropriate treatment options.  \nKeywords Health disparities, Uterine fibroids, Women’s health, Community-engaged research, Leiomyomas, Menstruation, Taboo, Latinas, Black women  \n*Correspondence: Joyce E. Balls-Berry [j.balls-berry@wustl.edu](j.balls-berry@wustl.edu)  \nFull list of author information is available at the end of the article  \n© The Author(s) 2024. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit [http://creativecommons.org/l](http://creativecommons.org/l)icenses/by/4.0/. The Creative Commons Public Domain Dedication waiver ([http://creativecommons.org/publicdomain/zero/1.0/](http:/","cbCaim1aZIw8oYEk","https://ap.wps.com/l/cbCaim1aZIw8oYEk","pdf",988029,"English","# Abstract\n## Background\n## Methods\n## Results\n## Conclusion\n# Background\n## Uterine fibroids and prevalence\n## Symptoms and reproductive effects\n## Risk factors and disparities","[{\"question\":\"What problem does the study address about uterine fibroids and menstruation?\",\"answer\":\"The study addresses disparities in uterine fibroids and the limited discussion and education about menstruation, particularly among Black women and Latinas, and how this affects symptom recognition and diagnosis timing.\"},{\"question\":\"How were community engagement studios used in the study?\",\"answer\":\"The study used two virtual community engagement studios separated by uterine fibroid diagnosis. Discussions were not audio recorded, notes were taken by notetakers, and notes were thematically analyzed in Atlas.ti using content analysis.\"},{\"question\":\"What did participants report about menstruation education and symptom normalization?\",\"answer\":\"Participants reported a lack of discussion about menstruation in home or school settings, especially around their first menstruation. This silence led many to normalize painful menstruation symptoms.\"},{\"question\":\"Why does the paper call for more communication with healthcare providers?\",\"answer\":\"Even with a uterine fibroid diagnosis, silence around menstruation persists. The paper calls for increased discussion about menstruation and for conversations between healthcare providers and patients to explore appropriate treatment options, including options patients may be interested in.\"}]","In our community, we normalize pain - discussions around menstruation and uterine fibroids with Black women and Latinas | PDF",1789996152,18]