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A January 2025 self-administered survey collected data from 164 Japanese family caregivers of diagnosed individuals. Caregiver burden was the primary outcome, assessed using the short Japanese Zarit Caregiving Inventory (J-ZBI_8). Regression models evaluated nine informational support types given at diagnosis while controlling for recipient and caregiver factors, revealing lower burden linked to dementia-related information and knowledge of local medical institutions.",{"@graph":69,"@context":122},[70,84,105],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":35,"@type":76,"position":81},"https://docshare.wps.com/document/healthcare/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/from-diagnosis-forward-how-early-information-shapes-the-family-caregiving-experience-in-dementia/428971/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/from-diagnosis-forward-how-early-information-shapes-the-family-caregiving-experience-in-dementia/428971.png","ImageObject",300,407,{"name":92,"@type":93},"LangkahRina","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-10-30","2026-09-29",true,{"@type":102,"interactionType":103,"userInteractionCount":52},"InteractionCounter",{"@type":104},"ViewAction",{"@type":106,"mainEntity":107},"FAQPage",[108,114,118],{"name":109,"@type":110,"acceptedAnswer":111},"What was the study’s main goal regarding dementia diagnosis information?","Question",{"text":112,"@type":113},"To examine how informational support provided at diagnosis affects the current caregiving burden experienced by family members.","Answer",{"name":115,"@type":110,"acceptedAnswer":116},"How was caregiver burden measured in this study?",{"text":117,"@type":113},"Caregiver burden was assessed using the short version of the Japanese Zarit Caregiving Inventory (J-ZBI_8).",{"name":119,"@type":110,"acceptedAnswer":120},"Which types of information were linked to lower caregiver burden?",{"text":121,"@type":113},"Dementia-related information and information about local medical institutions were significantly associated with lower caregiver burden.","https://schema.org",{"og:url":83,"og:type":124,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":126,"canonical":83},"index,follow",{"doc_id":128,"site_id":62},428971,1790764132,{"code":4,"msg":5,"data":131},{"doc_id":128,"user_id":132,"nickname":92,"user_avatar":133,"doc_module":4,"category_id":34,"category_name":35,"doc_title":65,"doc_description":67,"doc_content":134,"file_id":135,"file_url":136,"file_type":137,"file_size":138,"view_count":52,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":8,"language":139,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":140,"faqs":141,"seo_title":142,"seo_description":67,"update_tm":143,"read_time":81,"preview_page_count":4},962090893776,"https://ap-avatar.wpscdn.com/davatar_155a257f0dc6eb9ab79c44ca47cae57d","Innovation in Aging, 2025, Vol. 9, No. S2 1177  \nAbstract citation ID: igaf122.3941  \nFROM DIAGNOSIS FORWARD: HOW EARLY  \nINFORMATION SHAPES THE FAMILY CAREGIVING  \nEXPERIENCE IN DEMENTIA  \nTomoko Wakui1, Tsuyoshi Okamura2, Kae Ito2, Takumi Hirata3, and Tomoyuki Yabuki4, 1. Tokyo Metropolitan Institute for Geriatrics and Gerontology, Tokyo, Tokyo, Japan, 2. Tokyo Metropolitan Institute for Geriatrics and Gerontology, Itabashi, Tokyo, Japan, 3. Tokyo Metropolitan Institute of Gerontology, Itabashi, Tokyo, Japan, 4. University of Kochi, Kochi, Kochi, Japan  \nBeyond helping individuals and their families come to terms with a dementia diagnosis, appropriate informational support atthe time of diagnosis may influence how they manage life with dementia in the years that follow. This study aimed to examine the impact of informational support provided at the time of diagnosis on the current caregiving burden experienced by family members. A self-administered survey was conducted in January 2025 with 164 family caregivers of individuals diagnosed at dementia medical centers and by certified dementia support physicians across Japan. The primary outcome was caregiver burden, assessed using the short version of the Japanese Zarit Caregiving Inventory (J-ZBI_ 8) . Regression analyses controlled for care recipient characteristics, caregiver demographics, and caregiving context, while examining associations between nine types of informational support received at diagnosis and current caregiver burden. Caregivers most frequently reported receiving information about the disease itself (72.0%), long-term care services and Community General Support Centers (58.5%), and local medical institutions (37.2%). Practical information on legal, financial, or employment-related matters was less commonly provided.  \nAmong all types of support, only dementia-related information (B = –5.07, p \u003C .001) and information about local medical institutions (B = –2.93, p = .02) were significantly associated with lower caregiver burden. These findings indicate that early, focused informational support—particularly regarding the disease and access to local dementia-specialized clinics—may enhance caregivers’ preparedness and ease anxiety about managing future care needs.","cbCaiqeaOHdssKTM","https://ap.wps.com/l/cbCaiqeaOHdssKTM","pdf",1034933,"English","# Background and Aim\n# Methods\n## Participants and Survey\n## Outcome and Analysis\n# Results\n## Frequency of Information Types\n## Associations With Caregiver Burden\n# Conclusions","[{\"question\":\"What was the study’s main goal regarding dementia diagnosis information?\",\"answer\":\"To examine how informational support provided at diagnosis affects the current caregiving burden experienced by family members.\"},{\"question\":\"How was caregiver burden measured in this study?\",\"answer\":\"Caregiver burden was assessed using the short version of the Japanese Zarit Caregiving Inventory (J-ZBI_8).\"},{\"question\":\"Which types of information were linked to lower caregiver burden?\",\"answer\":\"Dementia-related information and information about local medical institutions were significantly associated with lower caregiver burden.\"}]","FROM DIAGNOSIS FORWARD: HOW EARLY INFORMATION SHAPES THE FAMILY CAREGIVING EXPERIENCE IN DEMENTIA | PDF",1790648229]