[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"detail-sidebar-cat-0-en-105":3,"doc-seo-424103-105":59,"doc-detail-424103-en":130},{"code":4,"msg":5,"data":6},0,"success",[7,13,18,23,28,33,38,43,48,51,55],{"id":8,"doc_module":4,"doc_module_name":9,"category_name":10,"show_sort_weight":11,"slug":12},1,"Document","Story & Novel",90,"story-novel",{"id":14,"doc_module":4,"doc_module_name":9,"category_name":15,"show_sort_weight":16,"slug":17},2,"Literature",80,"literature",{"id":19,"doc_module":4,"doc_module_name":9,"category_name":20,"show_sort_weight":21,"slug":22},4,"Exam",70,"exam",{"id":24,"doc_module":4,"doc_module_name":9,"category_name":25,"show_sort_weight":26,"slug":27},5,"Comic",60,"comic",{"id":29,"doc_module":4,"doc_module_name":9,"category_name":30,"show_sort_weight":31,"slug":32},6,"Technology",50,"technology",{"id":34,"doc_module":4,"doc_module_name":9,"category_name":35,"show_sort_weight":36,"slug":37},7,"Healthcare",40,"healthcare",{"id":39,"doc_module":4,"doc_module_name":9,"category_name":40,"show_sort_weight":41,"slug":42},8,"Research & Report",30,"research-report",{"id":44,"doc_module":4,"doc_module_name":9,"category_name":45,"show_sort_weight":46,"slug":47},9,"Religion & Spirituality",20,"religion-spirituality",{"id":46,"doc_module":4,"doc_module_name":9,"category_name":49,"show_sort_weight":46,"slug":50},"World Cup","world-cup",{"id":52,"doc_module":4,"doc_module_name":9,"category_name":53,"show_sort_weight":52,"slug":54},10,"Lifestyle","lifestyle",{"id":56,"doc_module":4,"doc_module_name":9,"category_name":57,"show_sort_weight":24,"slug":58},19,"General","general",{"code":4,"msg":60,"data":61},"ok",{"site_id":62,"language":63,"slug":64,"title":65,"keywords":66,"description":67,"schema_data":68,"social_meta":123,"head_meta":125,"extra_data":127,"updated_unix":129},105,"en","enhancing-communication-and-trust-in-advance-care-planning-for-older-adults-with-sickle-cell-disease-abstract","ENHANCING COMMUNICATION AND TRUST IN ADVANCE CARE PLANNING FOR OLDER ADULTS WITH SICKLE CELL DISEASE - Abstract","","Despite advances in sickle cell disease (SCD) treatment, life expectancy remains about 20 years shorter than for people without SCD, making advance care planning (ACP) essential. This study addresses a gap in understanding ACP preferences among older adults with SCD by interviewing 19 participants (age ≥ 50). Conventional content analysis identified three themes: family involvement, early and appropriately timed ACP, and limited ACP communication. Participants valued trusted, knowledgeable providers and preferred clinic discussions without rushing.",{"@graph":69,"@context":122},[70,84,105],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":35,"@type":76,"position":81},"https://docshare.wps.com/document/healthcare/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/enhancing-communication-and-trust-in-advance-care-planning-for-older-adults-with-sickle-cell-disease-abstract/424103/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/enhancing-communication-and-trust-in-advance-care-planning-for-older-adults-with-sickle-cell-disease-abstract/424103.png","ImageObject",300,407,{"name":92,"@type":93},"Terk","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-11-06","2026-09-28",true,{"@type":102,"interactionType":103,"userInteractionCount":44},"InteractionCounter",{"@type":104},"ViewAction",{"@type":106,"mainEntity":107},"FAQPage",[108,114,118],{"name":109,"@type":110,"acceptedAnswer":111},"Why is advance care planning especially important for older adults with sickle cell disease?","Question",{"text":112,"@type":113},"Life expectancy for SCD remains about 20 years shorter than for people without SCD. This makes ACP crucial for aligning future care with patients’ wishes.","Answer",{"name":115,"@type":110,"acceptedAnswer":116},"How was the study conducted to understand ACP preferences?",{"text":117,"@type":113},"Researchers interviewed 19 older adults with SCD (age ≥ 50). Interview topics included comfort discussing end-of-life care, prior ACP discussions, and ACP preferences, then applied conventional content analysis.",{"name":119,"@type":110,"acceptedAnswer":120},"What were the three main themes found in participants’ ACP preferences?",{"text":121,"@type":113},"Themes were: the importance of family involvement, the need for early and appropriately timed ACP, and limited ACP communication. Many participants wanted family present but differed on who should make end-of-life decisions, and preferred discussions with a trusted knowledgeable provider.","https://schema.org",{"og:url":83,"og:type":124,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":126,"canonical":83},"index,follow",{"doc_id":128,"site_id":62},424103,1790790999,{"code":4,"msg":5,"data":131},{"doc_id":128,"user_id":132,"nickname":92,"user_avatar":133,"doc_module":4,"category_id":34,"category_name":35,"doc_title":65,"doc_description":67,"doc_content":134,"file_id":135,"file_url":136,"file_type":137,"file_size":138,"view_count":44,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":8,"language":139,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":140,"faqs":141,"seo_title":142,"seo_description":67,"update_tm":143,"read_time":81,"preview_page_count":4},1099525198933,"https://ap-avatar.wpscdn.com/davatar_155a257f0dc6eb9ab79c44ca47cae57d","Innovation in Aging, 2025, Vol. 9, No. S2 769  \nAbstract citation ID: igaf122.2613  \nENHANCING COMMUNICATION AND TRUST IN ADVANCE CARE PLANNING FOR OLDER ADULTS WITH SICKLE CELL DISEASE  \nTamara Poole1, Rania Mohamed2, Francyess Denis Oliva2, Teagan Callaway2, John Strouse2, and Charity Oyedeji2, 1.  \nDuke University School of Nursing, Durham, North Carolina, United States, 2. Duke University School of Medicine, Durham, North Carolina, United States  \nDespite advancements in treatments, life expectancy for sickle cell disease (SCD) remains 20 years shorter than people without SCD, making advance care planning (ACP) important. There is a gap in literature on ACP preferences of older adults with SCD. This study aims to describe ACP preferences for older adults with SCD. We interviewed 19 older adults with SCD (age ≥ 50) . Interview questions addressed comfort discussing end-of-life care, nature of prior ACP discussions, and preferences for ACP. The data was analyzed using conventional content analysis. There were three themes. Theme one was importance of family involvement. Participants described preferences to have family present during ACP. Many preferred not leaving the burden of end-of-life decisions to family, while others preferred their family making end-of-life decisions. Participants stated preferences for their healthcare proxy (HCP), but the majority reported no HCP documentation. Theme two was early ACP and appropriate timing. Participants described discussing ACP while sick in the hospital as inappropriate. Due to the unpredictably of SCD, many stated that ACP should start in early adulthood or when they’re capable of understanding their options. Theme three was limited ACP communication. Participants reported limited communication or lack thereof about ACP preferences. Most participants were open to communication with a trusted provider they perceived to be knowledgeable of their SCD to provide information on or complete ACP documents. They preferred discussing ACPin clinic without rushing or interruptions. This highlights the importance of early family-centered ACP to honor the wishes of older adults with SCD.","cbCaisu8X0LqRK7d","https://ap.wps.com/l/cbCaisu8X0LqRK7d","pdf",693771,"English","# Study Background\n# Methods\n# Results: Key Themes\n## Family Involvement\n## Early ACP and Timing\n## Limited ACP Communication\n# Implications for Practice","[{\"question\":\"Why is advance care planning especially important for older adults with sickle cell disease?\",\"answer\":\"Life expectancy for SCD remains about 20 years shorter than for people without SCD. This makes ACP crucial for aligning future care with patients’ wishes.\"},{\"question\":\"How was the study conducted to understand ACP preferences?\",\"answer\":\"Researchers interviewed 19 older adults with SCD (age ≥ 50). Interview topics included comfort discussing end-of-life care, prior ACP discussions, and ACP preferences, then applied conventional content analysis.\"},{\"question\":\"What were the three main themes found in participants’ ACP preferences?\",\"answer\":\"Themes were: the importance of family involvement, the need for early and appropriately timed ACP, and limited ACP communication. Many participants wanted family present but differed on who should make end-of-life decisions, and preferred discussions with a trusted knowledgeable provider.\"}]","ENHANCING COMMUNICATION AND TRUST IN ADVANCE CARE PLANNING FOR OLDER ADULTS WITH SICKLE CELL DISEASE - Abstract | PDF",1790632937]