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In the United States, it highlights pathways from first-responder decisions and legal encounters to compounded distrust in care. The article focuses on caregivers as proxy decision makers and argues that fragmented access to health information enables a cycle of misinformation exchange among providers and families, raising concerns for transitional youth.",{"@graph":69,"@context":122},[70,84,105],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":35,"@type":76,"position":81},"https://docshare.wps.com/document/healthcare/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/disrupting-the-cycle-of-medical-distrust-between-caregivers-and-the-health-care-system-for-persons-living-with-serious-mental-illness-what-does-misinformation-have-to-do-with-it-article-5-2022/578358/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/disrupting-the-cycle-of-medical-distrust-between-caregivers-and-the-health-care-system-for-persons-living-with-serious-mental-illness-what-does-misinformation-have-to-do-with-it-article-5-2022/578358.png","ImageObject",300,407,{"name":92,"@type":93},"Ivy","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-10-19","2026-10-15",true,{"@type":102,"interactionType":103,"userInteractionCount":81},"InteractionCounter",{"@type":104},"ViewAction",{"@type":106,"mainEntity":107},"FAQPage",[108,114,118],{"name":109,"@type":110,"acceptedAnswer":111},"What communication difficulties does the article identify for people living with serious mental illness during crises?","Question",{"text":112,"@type":113},"It describes significant challenges in communicating treatment preferences when a mental health crisis occurs, alongside functional impairment that limits major life activities.","Answer",{"name":115,"@type":110,"acceptedAnswer":116},"How do first-responder decisions contribute to medical distrust?",{"text":117,"@type":113},"When arrest is the decision, the article explains a cascade of criminal justice interactions, including coercion and/or involuntary commitment, which can alienate individuals from seeking care and intensify distrust of providers.",{"name":119,"@type":110,"acceptedAnswer":120},"What role do caregivers play, and why does limited access to health information matter?",{"text":121,"@type":113},"Caregivers often serve as proxy decision makers, but difficulties reviewing fragmented information across institutions can restrict their involvement. The article also notes that caregiver access to health records is not automatic and requires authorization during emergencies.","https://schema.org",{"og:url":83,"og:type":124,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":126,"canonical":83},"index,follow",{"doc_id":128,"site_id":62},578358,1792279438,{"code":4,"msg":5,"data":131},{"doc_id":128,"user_id":132,"nickname":92,"user_avatar":133,"doc_module":4,"category_id":34,"category_name":35,"doc_title":65,"doc_description":67,"doc_content":134,"file_id":135,"file_url":136,"file_type":137,"file_size":138,"view_count":81,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":56,"language":139,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":140,"faqs":141,"seo_title":142,"seo_description":67,"update_tm":143,"read_time":144},549758252649,"https://ap-avatar.wpscdn.com/avatar/8000253669c5317157?_k=1778319167496531819","Journal of Applied Research on Children: Informing Policy for Children at Risk  \nVolume 13  \nIssue 2 Healthcare Misinformation and Child, Family, and Community Health  \nArticle 5  \n2022  \nDisrupting the Cycle of Medical Distrust Between Caregivers and the Health Care System For Persons Living With Serious Mental Illness: What Does Misinformation Have To Do With It?  \nVirginia A. Brown  \nUniversity of Texas at Austin, Dell Medical School, [virginia.brown@austin.utexas.edu](virginia.brown@austin.utexas.edu)  \nChristine Thomas  \nUniversity of Texas at Austin, Dell Medical School, [christine.saenz@austin.utexas.edu](christine.saenz@austin.utexas.edu)  \nFollow this and additional works at: [https://digitalcommons.library.tmc.edu/childrenatrisk](https://digitalcommons.library.tmc.edu/childrenatrisk)  \nRecommended Citation  \nBrown, Virginia A. and Thomas, Christine (2022) \"Disrupting the Cycle of Medical Distrust Between Caregivers and the Health Care System For Persons Living With Serious Mental Illness: What Does Misinformation Have To Do With It?,\" Journal of Applied Research on Children: Informing Policy for Children at Risk: Vol. 13: Iss. 2, Article 5.  \nDOI: [https://doi.org/10.58464/2155-5834.1522](https://doi.org/10.58464/2155-5834.1522)  \nAvailable at: [https://digitalcommons.library.tmc.edu/childrenatrisk/vol13/iss2/5](https://digitalcommons.library.tmc.edu/childrenatrisk/vol13/iss2/5)  \nThe Journal of Applied Research on Children is brought to you for free and open access by CHILDREN AT RISK at DigitalCommons@The Texas Medical Center. It has a \"cc by-nc-nd\" Creative Commons license\" (Attribution NonCommercial No Derivatives) For more information, please [contact](contact digitalcommons@exch.library.tmc.edu)[ digitalcommons@exch.library.tmc.edu](contact digitalcommons@exch.library.tmc.edu)  \nDisrupting the Cycle of Medical Distrust Between Caregivers and the Health Care System For Persons Living With Serious Mental Illness: What Does Misinformation Have To Do With It?  \nAcknowledgements  \nWe want thank the following individuals for their expertise and assistance throughout all aspects of our study and writing process: Billy Table, Oshyn Sky, Phillip Schnarrs and Nazan Aksan.  \nThis article is available in Journal of Applied Research on Children: Informing Policy for Children at Risk:  \n[https://digitalcommons.library.tmc.edu/childrenatrisk/vol13/iss2/5](https://digitalcommons.library.tmc.edu/childrenatrisk/vol13/iss2/5)  \nDisrupting the Cycle of Medical Distrust Between Caregivers and the Health Care System  \nFor Persons Living With Serious Mental Illness:  \nWhat Does Misinformation Have To Do With It?  \nPersons living with a serious mental illness (SMI), which can include affective disorders,  \npsychotic disorders, bipolar disorders, and major depressive disorders1 face significant  \nchallenges in communicating their preferences for treatment during a mental health crisis. SMI is  \ndefined as;  \na mental, behavioral, or emotional disorder resulting in serious functional  \nimpairment, which substantially interferes with or limits one or more major life  \nactivities. The burden of mental illnesses is particularly concentrated among  \nthose who experience disability due to SMI.2  \nIn the United States, there were an estimated 14.1 million persons aged 18 or older who live with SMI.2 Moreover, young adults aged “18-25 years had the highest prevalence of SMI” compared to their older counterparts.2 Annually, for the 5 .5% of all persons living with SMI, the National Alliance for Mental Health reported that, in 2021, approximately “2 million times a year, people  \nwith serious mental illness are booked into jail”.3 Added to this are the decisions made by first  \nresponders regarding who is hospitalized or jailed. When arrest is the decision a cascade of  \ncriminal justice interactions including coercion and/or involuntary commitment can occur  \nleading to alienating individuals with SMIs from seeking care, and compounding patient","cbCaimpkZM5Emqiv","https://ap.wps.com/l/cbCaimpkZM5Emqiv","pdf",616082,"English","# Introduction\n## Communication challenges during mental health crises\n## Caregiver experiences and proxy decision-making\n## Misinformation exchange and systemic barriers","[{\"question\":\"What communication difficulties does the article identify for people living with serious mental illness during crises?\",\"answer\":\"It describes significant challenges in communicating treatment preferences when a mental health crisis occurs, alongside functional impairment that limits major life activities.\"},{\"question\":\"How do first-responder decisions contribute to medical distrust?\",\"answer\":\"When arrest is the decision, the article explains a cascade of criminal justice interactions, including coercion and/or involuntary commitment, which can alienate individuals from seeking care and intensify distrust of providers.\"},{\"question\":\"What role do caregivers play, and why does limited access to health information matter?\",\"answer\":\"Caregivers often serve as proxy decision makers, but difficulties reviewing fragmented information across institutions can restrict their involvement. The article also notes that caregiver access to health records is not automatic and requires authorization during emergencies.\"}]","Disrupting the Cycle of Medical Distrust Between Caregivers and the Health Care System For Persons Living With Serious Mental Illness: What Does Misinformation Have To Do With It? - Article 5 - 2022 | PDF",1792033586,48]