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Using Caregiver Identity Theory, the study analyzes 18 in-depth interviews with long-term spousal caregivers. Five themes emerged, covering disrupted roles, internalized caregiver identity, navigating uncertainty and strain, sustaining identity via adaptation and engagement, and meaning-making through connection and shared history. Findings frame caregiving identity as dynamic and show how resilience is constructed over time, including beyond active care.",{"@graph":69,"@context":126},[70,84,105],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":40,"@type":76,"position":81},"https://docshare.wps.com/document/research-report/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/caregiver-identity-and-resilience-across-and-beyond-dementia-care-a-qualitative-study/426997/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/caregiver-identity-and-resilience-across-and-beyond-dementia-care-a-qualitative-study/426997.png","ImageObject",300,407,{"name":92,"@type":93},"hdkawk","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-10-20","2026-09-29",true,{"@type":102,"interactionType":103,"userInteractionCount":34},"InteractionCounter",{"@type":104},"ViewAction",{"@type":106,"mainEntity":107},"FAQPage",[108,114,118,122],{"name":109,"@type":110,"acceptedAnswer":111},"What theoretical approach guided the study?","Question",{"text":112,"@type":113},"The study was guided by Caregiver Identity Theory, which informed how identity transitions and resilience were examined across the care trajectory.","Answer",{"name":115,"@type":110,"acceptedAnswer":116},"How was the research conducted and who participated?",{"text":117,"@type":113},"The researchers conducted a thematic analysis of 18 in-depth interviews with long-term spousal caregivers of people living with dementia.",{"name":119,"@type":110,"acceptedAnswer":120},"What are the five themes about caregiving identity and resilience?",{"text":121,"@type":113},"The themes include disruption of familiar roles, internalizing the caregiver identity, navigating uncertainty and strain, sustaining identity through adaptation and engagement, and meaning-making through connection and shared history.",{"name":123,"@type":110,"acceptedAnswer":124},"How do caregivers develop resilience over time?",{"text":125,"@type":113},"Caregivers foster resilience by adapting to changing roles, staying grounded in personal values, and making meaning of their experiences as care dynamics evolve, sometimes extending beyond active care.","https://schema.org",{"og:url":83,"og:type":128,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":130,"canonical":83},"index,follow",{"doc_id":132,"site_id":62},426997,1791021389,{"code":4,"msg":5,"data":135},{"doc_id":132,"user_id":136,"nickname":92,"user_avatar":137,"doc_module":4,"category_id":39,"category_name":40,"doc_title":65,"doc_description":67,"doc_content":138,"file_id":139,"file_url":140,"file_type":141,"file_size":142,"view_count":34,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":8,"language":143,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":144,"faqs":145,"seo_title":146,"seo_description":67,"update_tm":147,"read_time":81},3985747859855,"https://ap-avatar.wpscdn.com/davatar_276721f389ce27ea32af1340a28f341c","Innovation in Aging, 2025, Vol. 9, No. S2 1161  \nAbstract citation ID: igaf122.3892  \nCAREGIVER IDENTITY AND RESILIENCE  \nACROSS AND BEYOND DEMENTIA CARE:  \nA QUALITATIVE STUDY  \nIda Ghaemmaghamfarahani, Chizobam Nweke, and  \nR. Amanda Cooper, University of Connecticut, Storrs, Connecticut, United States  \nWith increasing dementia prevalence and reliance on spousal care partners, understanding how caregiving identity evolves and how resilience is fostered across the care trajectory is crucial. While dementia research often emphasizes caregiver burden, fewer studies explore how identity and resilience develop in response to shifting roles and changing relationship dynamics. Guided by Caregiver Identity Theory, we conducted a thematic analysis of 18 in-depth interviews with long-term spousal caregivers of people living with dementia to examine how they experience identity transitions and cultivate resilience as care dynamics evolve. Five interrelated themes emerged: disruption of familiar roles and relational structures, highlighting loss of shared routines and partner reciprocity; internalizing the caregiver identity, reflecting deepened commitment and sense of duty; navigating uncertainty and strain, encompassing emotional, physical, and existential stressors, including ambiguous loss and caregiving self-doubt; sustaining identity through adaptation and engagement, illustrating how caregivers reframed challenges, sought support, and retained purpose; and meaning-making through connection and shared history, capturing how long-term bonds, lucid moments, and partner appreciation contributed to resilience and meaning. Findings highlight caregiving identity asa dynamic, evolving process. Caregivers developed resilience by adapting to changing roles, remaining grounded in personal values, and making meaning of their experiences over time. For some, caregiver identity continued beyond active care, offering insight into how long-term roles and meaning-making evolve. These insights can inform research and guide efforts to better understand and support caregivers’ evolving identities, needs, and processes through which they construct resilience and meaning across and beyond the care journey.","cbCaijDRp50TkUdW","https://ap.wps.com/l/cbCaijDRp50TkUdW","pdf",1020965,"English","# Abstract\n## Care trajectory and caregiving identity\n## Theoretical framework and study design\n## Five interrelated themes\n## Implications for resilience and identity beyond care","[{\"question\":\"What theoretical approach guided the study?\",\"answer\":\"The study was guided by Caregiver Identity Theory, which informed how identity transitions and resilience were examined across the care trajectory.\"},{\"question\":\"How was the research conducted and who participated?\",\"answer\":\"The researchers conducted a thematic analysis of 18 in-depth interviews with long-term spousal caregivers of people living with dementia.\"},{\"question\":\"What are the five themes about caregiving identity and resilience?\",\"answer\":\"The themes include disruption of familiar roles, internalizing the caregiver identity, navigating uncertainty and strain, sustaining identity through adaptation and engagement, and meaning-making through connection and shared history.\"},{\"question\":\"How do caregivers develop resilience over time?\",\"answer\":\"Caregivers foster resilience by adapting to changing roles, staying grounded in personal values, and making meaning of their experiences as care dynamics evolve, sometimes extending beyond active care.\"}]","CAREGIVER IDENTITY AND RESILIENCE ACROSS AND BEYOND DEMENTIA CARE - A QUALITATIVE STUDY | PDF",1790642448]