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Sharmin Quadir  , 1 Afroja Alam, 1  \nA K M Motiur Rahman Bhuiyan, 1 Nashid Islam,2 Mridul Sarker  , 1 Farzana Rabin3  \n1Palliative Medicine Department, Bangabandhu Sheikh Mujib Medical University, Dhaka, Bangladesh  \n2Palliative Care Unit, Bangladesh Cancer Society Hospital and Welfare Home, Dhaka, Bangladesh  \n3Department of Psychiatry, Holy Family Red Crescent Medical College, Dhaka, Bangladesh  \nCorrespondence to  \nDr Afroja Alam;  \n[afrojaalamk55@gmail.com](afrojaalamk55@gmail.com)  \nReceived 7 October 2024 Accepted 15 October 2024  \n© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.  \nTo cite: Quadir SS, Alam A, Bhuiyan AKMMR, et al.  \nBMJ Supportive & Palliative Care Epub ahead of print: [please include Day Month Year] . doi:10 . 1136/ spcare-2024-005224  \nABSTRACT  \nObjective During the period of caregiving, informal caregivers of incurably ill patients experience caregiving burden that is often overlooked since the focus is on the suffering of the care receiver. In Bangladesh, informal caregivers often cannot express their suffering as they are culturally obliged to take responsibility for sick family members. This cross-sectional study was conducted among 156 informal caregivers of patients with advanced cancer attending the Department of Palliative Medicine at Bangabandhu Sheikh Mujib Medical University, Dhaka, Bangladesh.  \nMethods The sample was chosen consecutively based on the inclusion and exclusion criteria. Face-to-face interviews were conducted using a well-designed questionnaire. A previously translated and validated Bangla version of the Zarit Burden Interview (ZBI) was used to assess the burden of the informal caregivers.  \nResults The mean ZBI score of the informal caregivers was 28±11 . The study found that caregiver burden was significantly associated with the relationship between the informal caregiver and the patient, as well as the caregiver’s awareness of the patient’s prognosis. Conclusion Currently, no facilities for informal caregivers are available in Bangladesh. As extended members of the patient’s care team, the burden experienced by the caregivers needs to be given more attention and should be taken into account in healthcare.  \nBACKGROUND  \nBangladesh is a densely populated, lowermiddle-income country in Southeast Asia, constituting almost 2.2% of the world’s population and ranking as the eighth most populous country globally. According to the 2023 Revision of World Population Prospects, Bangladesh’s population currently stands at 173 million,1 of whom about 26.75% are aged 0–14 years,  \n68.02% are 15–64 years and 5.23% are 65 years and older.2  \nAs the ageing population and the number of people living with chronic diseases increase, the care of sick individuals is shifting from hospitals to the community and family. Family members play a vital role in the long-term care of sick family members.3 Globally, over 56.8 million people require palliative care yearly, with the majority (76%) of these adults living in lower-middle-income countries.4 In Bangladesh, palliative care services are limited to level 3a and are only offered in the capital city of Dhaka.4  \nResearch indicates that palliative care helps balance the care burden while allowing caregivers to continue with their daily lives.5 The role of informal caregivers of patients with advanced cancer has gained importance over time. Without receiving any financial support, these caregivers, often the patient’s relatives, bear most of the physical and emotional burden while caring for chronically ill patients. Informal caregivers allow care recipients to stay in their homes, delaying or avoiding hospital admissions. However, caregiving tasks can cause psychological discomfort and have long-term detrimental effects on the caregivers’ health.6 Informal caregi","cbCairAqGW6vQPB1","https://ap.wps.com/l/cbCairAqGW6vQPB1","pdf",230655,"English","# Abstract\n## Objective\n## Methods\n## Results\n## Conclusion\n# Background\n# Methods\n## Study design and ethics statement\n## Study population\n## Sample criteria","[{\"question\":\"What was the objective of the study?\",\"answer\":\"To assess the level of caregiver burden and the factors associated with caregiver burden among informal caregivers of patients with advanced cancer receiving care at a tertiary palliative medicine department in Bangladesh.\"},{\"question\":\"How was caregiver burden measured?\",\"answer\":\"Caregiver burden was assessed using the Zarit Burden Interview (ZBI) in a previously translated and validated Bangla version, administered through face-to-face interviews.\"},{\"question\":\"Which factors were significantly associated with caregiver burden?\",\"answer\":\"Caregiver burden was significantly associated with the relationship between the informal caregiver and the patient, and with the caregiver’s awareness of the patient’s prognosis.\"}]","Caregiver burden in advanced cancer in tertiary care palliative medicine | PDF",1790692420]