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To inform a prognosis-informed roadmap for people living with dementia, qualitative interviews explored care partners’ ADRD prognosis information needs and preferences. The study is recruiting, with nine completed interviews analyzed via qualitative thematic analysis. Findings show gaps in guidance at diagnosis and high priority for safety and living-arrangement–relevant outcomes, with acceptance of prediction uncertainty and intent to use information for healthcare decisions, finances, and family plans.",{"@graph":69,"@context":122},[70,84,105],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":35,"@type":76,"position":81},"https://docshare.wps.com/document/healthcare/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/care-partner-views-on-a-prognosis-informed-dementia-roadmap/427966/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/care-partner-views-on-a-prognosis-informed-dementia-roadmap/427966.png","ImageObject",300,407,{"name":92,"@type":93},"Melati","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-10-23","2026-09-29",true,{"@type":102,"interactionType":103,"userInteractionCount":39},"InteractionCounter",{"@type":104},"ViewAction",{"@type":106,"mainEntity":107},"FAQPage",[108,114,118],{"name":109,"@type":110,"acceptedAnswer":111},"What unmet need in ADRD care partner support does the study focus on?","Question",{"text":112,"@type":113},"The study focuses on anticipatory guidance and individualized prognostic information for ADRD care partners.","Answer",{"name":115,"@type":110,"acceptedAnswer":116},"Which prognostic outcomes did care partners prioritize most?",{"text":117,"@type":113},"Care partners prioritized outcomes impacting living arrangements and safety, including risks related to unsafe behaviors, supervision and personal care assistance, and mobility challenges.",{"name":119,"@type":110,"acceptedAnswer":120},"How did care partners feel about uncertainty in predictions?",{"text":121,"@type":113},"Care partners were uniformly accepting of uncertainty in predictions and still expected the prognostic information to be useful.","https://schema.org",{"og:url":83,"og:type":124,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":126,"canonical":83},"index,follow",{"doc_id":128,"site_id":62},427966,1790695672,{"code":4,"msg":5,"data":131},{"doc_id":128,"user_id":132,"nickname":92,"user_avatar":133,"doc_module":4,"category_id":34,"category_name":35,"doc_title":65,"doc_description":67,"doc_content":134,"file_id":135,"file_url":136,"file_type":137,"file_size":138,"view_count":39,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":8,"language":139,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":140,"faqs":141,"seo_title":142,"seo_description":67,"update_tm":143,"read_time":81},962085570644,"https://ap-avatar.wpscdn.com/davatar_994ba38a5ba835b3df7d355c54d3ed8d","1028 Innovation in Aging, 2025, Vol. 9, No. S2  \nunmet need in ADRD care partner support is anticipatory guidance and individualized prognostic information. Given a growing compendium of prognostic tools for older adults, including specifically for people living with dementia (PLWD), the science is ripe for developing a prognosis-informed roadmap in PLWD. However, prognostic tools will have little or negative impact if they are not relevant or acceptable to end-users. We aimed to explore care partners’ADRD prognosis information needs and preferences using qualitative interviews. The study is actively recruiting, with 9 completed interviews thus far. Interviews were analyzed using qualitative thematic analysis. We found that care partners often reported not receiving adequate guidance at the time of ADRD diagnosis. Care partners consider multiple prognostic outcomes important, including life expectancy, likelihood of unsafe behaviors, need for supervision and personal care assistance, and likelihood of mobility challenges. Outcomes that impact living arrangements and safety were the highest priority. Care partners were uniformly accepting of the potential uncertainty inherent in predictions and would nonetheless find the prognostic information useful. Some preferred more personalized predictions while others preferred more general guidance. Care partners reported that the prognosis information would impact healthcare decisions as well as finances, living arrangements, and family members’ life plans. Our preliminary findings demonstrate that ADRD care partners strongly desire prognosis information for anticipatory guidance despite potential uncertainties and prioritize predictions about safety challenges and care needs as the most important.  \nAbstract citation ID: igaf122.3465  \nCARE PARTNER VIEWS ON A PROGNOSIS-INFORMED  \nDEMENTIA ROADMAP  \nNancy Schoenborn, and Halima Amjad, Johns Hopkins University School of Medicine, Baltimore, Maryland, United States  \nAlmost all older adults with Alzheimer’s disease and related dementias (ADRD) receive help from care partners. An important","cbCaiawX9R5cV1Az","https://ap.wps.com/l/cbCaiawX9R5cV1Az","pdf",47193,"English","# Care Partner Information Needs and Preferences\n## Guidance at Diagnosis\n## Prioritized Prognostic Outcomes\n## Preferences for Uncertainty and Personalization\n## Use of Prognosis Information in Decisions","[{\"question\":\"What unmet need in ADRD care partner support does the study focus on?\",\"answer\":\"The study focuses on anticipatory guidance and individualized prognostic information for ADRD care partners.\"},{\"question\":\"Which prognostic outcomes did care partners prioritize most?\",\"answer\":\"Care partners prioritized outcomes impacting living arrangements and safety, including risks related to unsafe behaviors, supervision and personal care assistance, and mobility challenges.\"},{\"question\":\"How did care partners feel about uncertainty in predictions?\",\"answer\":\"Care partners were uniformly accepting of uncertainty in predictions and still expected the prognostic information to be useful.\"}]","CARE PARTNER VIEWS ON A PROGNOSIS-INFORMED DEMENTIA ROADMAP | PDF",1790645316]