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A multi-method design combined an original survey and qualitative descriptive interviews, analyzing quantitative outcomes with descriptive statistics and qualitative themes with thematic analysis. The survey (n=63) showed limited tube-feeding knowledge; 35% chose tube feeding in an end-of-life scenario, while 41% were uncertain. Interviews (21 caregivers, 13 providers) highlight harmony-oriented family decision preferences, misunderstandings about hand feeding, and a preference for indirect end-of-life communication. Results informed a culturally adapted decision aid, “Making choices: feeding options for patients with dementia,” with ongoing feedback and a planned pilot on feasibility, acceptability, and preliminary efficacy.",{"@graph":69,"@context":127},[70,84,106],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":35,"@type":76,"position":81},"https://docshare.wps.com/document/healthcare/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/addressing-the-needs-of-chinese-american-dementia-caregivers-in-feeding-decisions-through-community-engagement/424431/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/addressing-the-needs-of-chinese-american-dementia-caregivers-in-feeding-decisions-through-community-engagement/424431.png","ImageObject",300,407,{"name":92,"@type":93},"Aldword","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-10-30","2026-09-28",true,{"@type":102,"interactionType":103,"userInteractionCount":105},"InteractionCounter",{"@type":104},"ViewAction",11,{"@type":107,"mainEntity":108},"FAQPage",[109,115,119,123],{"name":110,"@type":111,"acceptedAnswer":112},"What was the purpose of the community engagement study?","Question",{"text":113,"@type":114},"To assess Chinese American dementia caregivers’ knowledge and decision-making needs about feeding options and to inform a culturally adapted decision aid for feeding decisions.","Answer",{"name":116,"@type":111,"acceptedAnswer":117},"What did the survey of caregivers show about tube feeding?",{"text":118,"@type":114},"Among 63 participants, knowledge about tube feeding was limited; 35% opted for tube feeding in an end-of-life scenario, while 41% were uncertain.",{"name":120,"@type":111,"acceptedAnswer":121},"What major themes emerged from the interviews?",{"text":122,"@type":114},"Caregivers valued family-based, harmony-oriented decision-making, often misunderstood that careful hand feeding equals starvation, and Chinese American people with dementia preferred indirect communication about end-of-life care wishes.",{"name":124,"@type":111,"acceptedAnswer":125},"What is the next stage after creating the decision aid?",{"text":126,"@type":114},"The team is collecting feedback to refine the decision aid and will conduct a pilot test of feasibility, acceptability, and preliminary efficacy of the intervention.","https://schema.org",{"og:url":83,"og:type":129,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":131,"canonical":83},"index,follow",{"doc_id":133,"site_id":62},424431,1790970078,{"code":4,"msg":5,"data":136},{"doc_id":133,"user_id":137,"nickname":92,"user_avatar":138,"doc_module":4,"category_id":34,"category_name":35,"doc_title":65,"doc_description":67,"doc_content":139,"file_id":140,"file_url":141,"file_type":142,"file_size":143,"view_count":105,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":8,"language":144,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":145,"faqs":146,"seo_title":147,"seo_description":67,"update_tm":148,"read_time":81,"preview_page_count":4},2336478940917,"https://ap-avatar.wpscdn.com/davatar_6f874abed73319feea01a86fa6f0fab8","416 Innovation in Aging, 2025, Vol. 9, No. S2  \ncollaboration with CaringKind, a community agency serving dementia caregivers in NYC, we conducted a multi-method study among Chinese American dementia caregivers consisting of an original survey to capture knowledge/attitudes about feeding decisions and a qualitative descriptive study to inform a culturally adapted decision aid. We calculated descriptive statistics for quantitative data and used thematic analysis for qualitative data. The survey (n = 63) showed that participants had limited knowledge about tube feeding; 35% opted for tube feeding in an end-of-life scenario, while 41% were uncertain. Qualitative interviews with 21 Chinese American dementia caregivers and 13 healthcare providers indicated that: 1) caregivers value family-based and harmony-oriented decision-making and often misunderstand that careful hand feeding equates to starvation; and 2) Chinese American persons with dementia prefer indirect communication regarding their end-of-life care wishes. Based on study results, we culturally adapted an appropriate decision aid titled “Making choices: feeding options for patients with dementia”successfully used with dementia caregivers. We are collecting feedback from caregivers and health care providers to make refinements. Next, we will pilot test the feasibility, acceptability, and preliminary efficacy of the culturally adapted decision aid intervention to better address the needs of our caregiver group.  \nAbstract citation ID: igaf122.1416  \nADDRESSING THE NEEDS OF CHINESE AMERICAN  \nDEMENTIA CAREGIVERS IN FEEDING DECISIONS  \nTHROUGH COMMUNITY ENGAGEMENT  \nYaolin Pei1, Bei Wu2, Terri Fried3, Dena Schulman-Green4, and Laura Hanson5, 1. The University of Texas at Austin, Austin, Texas, United States, 2. NYU Shanghai, Shanghai, China (People’s Republic), 3. Yale University School of Medicine, New Haven, Connecticut, United States, 4. New York University, New York, New York, United States, 5. The University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, North Carolina, United States  \nFeeding difficulties are common among individuals with advanced dementia. Dementia family caregivers have to make difficult decisions about feeding options. Despite limited clinical benefit, over 50% of Chinese individuals with advanced dementia receiving tube-feeding. Little is known about Chinese American dementia caregivers’ attitudes towards tube feeding and their decision-making needs regarding feeding options. In","cbCaieBaOEpRGkEx","https://ap.wps.com/l/cbCaieBaOEpRGkEx","pdf",405289,"English","# Study Overview\n## Survey and Quantitative Findings\n## Qualitative Interviews and Key Themes\n## Culturally Adapted Decision Aid and Next Steps","[{\"question\":\"What was the purpose of the community engagement study?\",\"answer\":\"To assess Chinese American dementia caregivers’ knowledge and decision-making needs about feeding options and to inform a culturally adapted decision aid for feeding decisions.\"},{\"question\":\"What did the survey of caregivers show about tube feeding?\",\"answer\":\"Among 63 participants, knowledge about tube feeding was limited; 35% opted for tube feeding in an end-of-life scenario, while 41% were uncertain.\"},{\"question\":\"What major themes emerged from the interviews?\",\"answer\":\"Caregivers valued family-based, harmony-oriented decision-making, often misunderstood that careful hand feeding equals starvation, and Chinese American people with dementia preferred indirect communication about end-of-life care wishes.\"},{\"question\":\"What is the next stage after creating the decision aid?\",\"answer\":\"The team is collecting feedback to refine the decision aid and will conduct a pilot test of feasibility, acceptability, and preliminary efficacy of the intervention.\"}]","ADDRESSING THE NEEDS OF CHINESE AMERICAN DEMENTIA CAREGIVERS IN FEEDING DECISIONS THROUGH COMMUNITY ENGAGEMENT | PDF",1790634185]