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It has been developed for you with input from people living with cancer, patient advocates, and cancer experts.  \nThis guide is part of the SHAPE initiative that is supported by an unrestricted grant from Servier.  \nJanie Airey © Getty Images  \nWhen you are diagnosed with CCA, you start a new part of your life. You are unlikely to have experienced anything like this before, and may feel like there is a lot of information to take in.  \nThis guide can give you a clearer idea of what to expect along the way. It has been designed to guide and support you, your family, and caregivers as you experience the different steps of CCA.  \nYou can use this guide to help you better understand the information you receive from your health care team. The guide also provides advice on questions you may ask yourself, your loved ones and your health care team, which can help you to feel more at ease.  \nAs you move forward, this guide will support you to adapt to life with CCA.  \n“The SHAPE program is really working on providing information for patients and other healthcare providers…especially in rare malignancies like cholangiocarcinoma.”  \nAngela Lamarca, Institute Fundacion Jimenez Diaz University Hospital, Spain.  \n“As patients, we must first equip ourselves with knowledge to become empowered. The SHAPE program helps us achieve this”  \nSteve and Claire Holmes, Cholangiocarcinoma Foundation Australia.  \nSteve Holmes  \nFounder – Chief Executive Patient Navigator and Survivor, Cholangiocarcinoma Foundation Australia  \nClaire Holmes  \nFounder – Chief Operations Caregiver Navigator, Cholangiocarcinoma Foundation Australia  \nand members of the Cholangiocarcinoma Foundation Australia  \nTHE ADAPT PATHWAY  \nEvery person living with CCA is unique. Your experiences and those of your family will be individual to you. However, there are key steps that are important for everyone.  \nThe ADAPT pathway brings together information that can help you to understand how your life will change after your diagnosis. It can also point you in the direction of resources that provide information in more detail.  \nKey steps following diagnosis are shown below. However, your pathway may not run in this order. You might have treatment more than once, or you may want to plan for the future straightaway. Whether you are reading this just after being diagnosed, during treatment or afterwards, you can use the ADAPT pathway to take you to the information that is most important to you right now, and you can return to earlier sections or jump to later ones whenever you need.  \nDiagnosis  \nAwareness  \nInformation to help you know more about CCA, understand your diagnosis and guidance on how to find more information online  \nThis will be the beginning of your CCA pathway where you receive a diagnosis and find out more about what this means for you.  \nDiscussions with loved ones and your health care team  \nDialogue  \nHow to talk about your diagnosis, including:  \n• Sharing the news with family, friends, and peers  \n• Preparing for conversations with health care professionals (including shared decision-making)  \nDialogue is important throughout the whole pathway and may be relevant whenever you need to speak to your family, loved ones or health care team about your cancer and how you feel.  \n Treatment Access  \nInformation to help and support you before, during and after treatment, including:  \n• Getting the most information and support from your health care team  \n• Clinical trials information  \nTreatment will usually happen fora period of time and then stop, but you may need to have treatment several times to help you feel better.  \nLiving Well  \nPsychologi","cbCaiu0mP3jnko34","https://ap.wps.com/l/cbCaiu0mP3jnko34","pdf",3006048,68,"English","# INTRODUCTION\n# THE ADAPT PATHWAY\n## Diagnosis\n## Awareness\n## Dialogue\n## Treatment Access\n## Living Well\n## Future Planning Take care\n# AWARENESS\n## UNDERSTANDING CCA\n## WHAT IS BILE AND THE BILE DUCTS?\n## WHAT IS CCA?\n## WHAT ARE THE DIFFERENT TYPES OF CCA?\n## WHAT ARE THE EARLY SYMPTOMS OF CCA?\n## HOW IS CCA DIAGNOSED?","[{\"question\":\"What is the purpose of the guide for people living with CCA and their caregivers?\",\"answer\":\"The guide helps readers understand what to expect after a CCA diagnosis and supports them, their family, and caregivers through different steps of the journey.\"},{\"question\":\"How does the ADAPT pathway help after diagnosis?\",\"answer\":\"It gathers information to explain how life may change after diagnosis and points readers toward resources for more detail, with flexibility to read sections in any order.\"},{\"question\":\"What key topics does the Awareness chapter cover about CCA?\",\"answer\":\"It focuses on what CCA is, including symptoms, disease staging, diagnostic tests, an introduction to the health care team, and guidance on finding trustworthy information.\"}]","Adapting to Cholangiocarcinoma (CCA) - A guide for people living with CCA and their caregivers | PDF",1791227563,171]