[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"doc-seo-421521-105":3,"detail-sidebar-cat-0-en-105":85,"doc-detail-421521-en":134},{"code":4,"msg":5,"data":6},0,"ok",{"site_id":7,"language":8,"slug":9,"title":10,"keywords":11,"description":12,"schema_data":13,"social_meta":78,"head_meta":80,"extra_data":82,"updated_unix":84},105,"en","adapting-a-self-care-intervention-to-meet-the-needs-of-caregivers-of-persons-with-frontotemporal-degeneration","Adapting a Self-Care Intervention to Meet the Needs of Caregivers of Persons With Frontotemporal Degeneration","","Randomized controlled pilot study results support a tailored coaching approach that partners health coaches and caregivers in 1:1 relationships to enhance self-care across 10 sessions over 6 months. The Virtual Caregiver Coach for You (ViCCY) was adapted from prior development for heart failure caregivers using reviews of self-care literature, earlier parent study findings, investigators’ clinical expertise, and focus groups. The adaptation incorporated Frontotemporal Dementia (FTD)–specific symptoms and caregiver demands, improving self-care monitoring and confidence versus control. Post-pilot focus group feedback highlighted structured content and suggested adding specialized topics such as anticipatory grief, informing the next phase protocol.",{"@graph":14,"@context":77},[15,34,56],{"@type":16,"itemListElement":17},"BreadcrumbList",[18,23,27,31],{"item":19,"name":20,"@type":21,"position":22},"https://docshare.wps.com","Home","ListItem",1,{"item":24,"name":25,"@type":21,"position":26},"https://docshare.wps.com/document/","Document",2,{"item":28,"name":29,"@type":21,"position":30},"https://docshare.wps.com/document/healthcare/","Healthcare",3,{"item":32,"name":10,"@type":21,"position":33},"https://docshare.wps.com/document/adapting-a-self-care-intervention-to-meet-the-needs-of-caregivers-of-persons-with-frontotemporal-degeneration/421521/",4,{"url":32,"name":10,"@type":35,"image":36,"author":41,"headline":10,"publisher":44,"fileFormat":47,"inLanguage":8,"description":12,"dateModified":48,"datePublished":49,"encodingFormat":47,"isAccessibleForFree":50,"interactionStatistic":51},"DigitalDocument",{"url":37,"@type":38,"width":39,"height":40},"https://docshare.wps.com/thumbnails/adapting-a-self-care-intervention-to-meet-the-needs-of-caregivers-of-persons-with-frontotemporal-degeneration/421521.png","ImageObject",300,407,{"name":42,"@type":43},"Sophia Brooks","Person",{"url":19,"name":45,"@type":46},"DocShare","Organization","application/pdf","2026-11-02","2026-09-28",true,{"@type":52,"interactionType":53,"userInteractionCount":55},"InteractionCounter",{"@type":54},"ViewAction",10,{"@type":57,"mainEntity":58},"FAQPage",[59,65,69,73],{"name":60,"@type":61,"acceptedAnswer":62},"What is ViCCY and what does it aim to improve for caregivers?","Question",{"text":63,"@type":64},"ViCCY is a virtual coaching intervention that explicitly targets caregivers’ own physical and emotional health through self-care. It uses motivational coaching to build awareness of caregiving demands, stressors, and coping strategies.","Answer",{"name":66,"@type":61,"acceptedAnswer":67},"How was the intervention adapted specifically for Frontotemporal Dementia caregivers?",{"text":68,"@type":64},"The protocol was adapted using a review of self-care literature, findings from an earlier heart failure parent study, clinical expertise, and focus groups. It added content related to unique FTD symptoms and the specific demands faced by this caregiver group.",{"name":70,"@type":61,"acceptedAnswer":71},"What were the results of the 6-month randomized controlled pilot study?",{"text":72,"@type":64},"Caregivers in the intervention group (n=15) showed significant improvements in self-care monitoring and confidence compared with the control group (n=15), based on two of three self-care domains.",{"name":74,"@type":61,"acceptedAnswer":75},"How did participant feedback after the pilot influence the next phase?",{"text":76,"@type":64},"After completing the pilot, focus groups reported appreciation for the structured content (including self-care, stress, and coping) and suggested integrating more specialized information such as anticipatory grief. The study team used this feedback to adapt the protocol for the next phase.","https://schema.org",{"og:url":32,"og:type":79,"og:title":10,"og:site_name":45,"og:description":12},"article",{"robots":81,"canonical":32},"index,follow",{"doc_id":83,"site_id":7},421521,1790766489,{"code":4,"msg":86,"data":87},"success",[88,92,96,100,105,110,114,119,124,127,130],{"id":22,"doc_module":4,"doc_module_name":25,"category_name":89,"show_sort_weight":90,"slug":91},"Story & Novel",90,"story-novel",{"id":26,"doc_module":4,"doc_module_name":25,"category_name":93,"show_sort_weight":94,"slug":95},"Literature",80,"literature",{"id":33,"doc_module":4,"doc_module_name":25,"category_name":97,"show_sort_weight":98,"slug":99},"Exam",70,"exam",{"id":101,"doc_module":4,"doc_module_name":25,"category_name":102,"show_sort_weight":103,"slug":104},5,"Comic",60,"comic",{"id":106,"doc_module":4,"doc_module_name":25,"category_name":107,"show_sort_weight":108,"slug":109},6,"Technology",50,"technology",{"id":111,"doc_module":4,"doc_module_name":25,"category_name":29,"show_sort_weight":112,"slug":113},7,40,"healthcare",{"id":115,"doc_module":4,"doc_module_name":25,"category_name":116,"show_sort_weight":117,"slug":118},8,"Research & Report",30,"research-report",{"id":120,"doc_module":4,"doc_module_name":25,"category_name":121,"show_sort_weight":122,"slug":123},9,"Religion & Spirituality",20,"religion-spirituality",{"id":122,"doc_module":4,"doc_module_name":25,"category_name":125,"show_sort_weight":122,"slug":126},"World Cup","world-cup",{"id":55,"doc_module":4,"doc_module_name":25,"category_name":128,"show_sort_weight":55,"slug":129},"Lifestyle","lifestyle",{"id":131,"doc_module":4,"doc_module_name":25,"category_name":132,"show_sort_weight":101,"slug":133},19,"General","general",{"code":4,"msg":86,"data":135},{"doc_id":83,"user_id":136,"nickname":42,"user_avatar":137,"doc_module":4,"category_id":111,"category_name":29,"doc_title":10,"doc_description":12,"doc_content":138,"file_id":139,"file_url":140,"file_type":141,"file_size":142,"view_count":55,"is_deleted":4,"is_public":22,"is_downloadable":22,"audit_status":22,"page_count":22,"language":143,"language_code":8,"site_id":7,"html_lang":8,"table_of_contents":144,"faqs":145,"seo_title":146,"seo_description":12,"update_tm":147,"read_time":30,"preview_page_count":4},962084925636,"https://ap-avatar.wpscdn.com/davatar_994ba38a5ba835b3df7d355c54d3ed8d","6 Innovation in Aging, 2025, Vol. 9, No. S2  \ncoaching intervention that partners health coaches and caregivers in 1:1 relationships to enhance self-care over 10 sessions in 6 months. ViCCY was initially developed for caregivers of persons living with heart failure. Throughout development, our study aimed to adapt this intervention for Frontotemporal Dementia (FTD) based on a review of self-care literature, parent study findings in heart failure, the investigators’ clinical expertise, and focus groups to include content related to the unique symptoms of FTD and the demands in this caregiver group. The 6-month randomized controlled pilot study demonstrated significant improvement in self-care monitoring and confidence (two of three domains on the self-care inventory) for the intervention group (n = 15) compared to a control group (n = 15) . We conducted focus groups after the completion of the pilot to receive feedback from participants about their experience in the intervention group. Caregivers appreciated the structured protocol content (including self-care, stress, and coping) but suggested integrating more specialized information, such as caregiver anticipatory grief. Based on the pilot study findings and focus group feedback, we have adapted the intervention protocol for the next phase of this intervention.  \nAbstract citation ID: igaf122.018  \nADAPTING A SELF-CARE INTERVENTION TO MEET  \nTHE NEEDS OF CAREGIVERS OF PERSONS WITH  \nFRONTOTEMPORAL DEGENERATION  \nLauren Fisher, Barbara Riegel, Karen Hirschman, and Lauren Massimo, University of Pennsylvania, Philadelphia, Pennsylvania, United States  \nWhile many caregiver interventions focus on education about symptom management for a person with dementia, the Virtual Caregiver Coach for You (ViCCY) focuses explicitly on the caregiver’s ability to care for their own physical and emotional health (i.e., self-care). We use motivational coaching to bring awareness to caregiving demands, stressors, and coping strategies for caregivers to build support and resources. ViCCY is a virtual health","cbCaihjxJU3rEFHG","https://ap.wps.com/l/cbCaihjxJU3rEFHG","pdf",70695,"English","# Overview\n## ViCCY intervention model\n## Adaptation for FTD needs\n## Pilot study outcomes\n## Focus group feedback and next phase","[{\"question\":\"What is ViCCY and what does it aim to improve for caregivers?\",\"answer\":\"ViCCY is a virtual coaching intervention that explicitly targets caregivers’ own physical and emotional health through self-care. It uses motivational coaching to build awareness of caregiving demands, stressors, and coping strategies.\"},{\"question\":\"How was the intervention adapted specifically for Frontotemporal Dementia caregivers?\",\"answer\":\"The protocol was adapted using a review of self-care literature, findings from an earlier heart failure parent study, clinical expertise, and focus groups. It added content related to unique FTD symptoms and the specific demands faced by this caregiver group.\"},{\"question\":\"What were the results of the 6-month randomized controlled pilot study?\",\"answer\":\"Caregivers in the intervention group (n=15) showed significant improvements in self-care monitoring and confidence compared with the control group (n=15), based on two of three self-care domains.\"},{\"question\":\"How did participant feedback after the pilot influence the next phase?\",\"answer\":\"After completing the pilot, focus groups reported appreciation for the structured content (including self-care, stress, and coping) and suggested integrating more specialized information such as anticipatory grief. The study team used this feedback to adapt the protocol for the next phase.\"}]","Adapting a Self-Care Intervention to Meet the Needs of Caregivers of Persons With Frontotemporal Degeneration | PDF",1790625054]