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Baseline results come from a 5-year NIA-funded longitudinal project using baseline surveys and qualitative open-ended questions from 134 informal caregivers across 39 diverse AL communities in Georgia. Descriptive statistics profile participants and thematic analysis explores qualitative responses, identifying limited self-care time, staff turnover, care discontinuity, and inconsistent AL/hospice communication as key contributors. Findings support interventions to improve AL resident care and reduce informal caregiver burden.",{"@graph":69,"@context":122},[70,84,105],{"@type":71,"itemListElement":72},"BreadcrumbList",[73,77,79,82],{"item":74,"name":75,"@type":76,"position":8},"https://docshare.wps.com","Home","ListItem",{"item":78,"name":9,"@type":76,"position":14},"https://docshare.wps.com/document/",{"item":80,"name":40,"@type":76,"position":81},"https://docshare.wps.com/document/research-report/",3,{"item":83,"name":65,"@type":76,"position":19},"https://docshare.wps.com/document/a-study-of-caregiver-burden-among-informal-dementia-caregivers-in-assisted-living/427283/",{"url":83,"name":65,"@type":85,"image":86,"author":91,"headline":65,"publisher":94,"fileFormat":97,"inLanguage":63,"description":67,"dateModified":98,"datePublished":99,"encodingFormat":97,"isAccessibleForFree":100,"interactionStatistic":101},"DigitalDocument",{"url":87,"@type":88,"width":89,"height":90},"https://docshare.wps.com/thumbnails/a-study-of-caregiver-burden-among-informal-dementia-caregivers-in-assisted-living/427283.png","ImageObject",300,407,{"name":92,"@type":93},"Eliana","Person",{"url":74,"name":95,"@type":96},"DocShare","Organization","application/pdf","2026-10-23","2026-09-29",true,{"@type":102,"interactionType":103,"userInteractionCount":34},"InteractionCounter",{"@type":104},"ViewAction",{"@type":106,"mainEntity":107},"FAQPage",[108,114,118],{"name":109,"@type":110,"acceptedAnswer":111},"What population does the study focus on?","Question",{"text":112,"@type":113},"The study focuses on informal caregivers—relatives and friends—who provide care for assisted living residents with dementia, particularly when residents have advanced dementia.","Answer",{"name":115,"@type":110,"acceptedAnswer":116},"How was caregiver burden measured?",{"text":117,"@type":113},"Caregiver burden was assessed using the Zarit Burden Interview (ZBI-12), with results reported as mild to moderate versus severe burden levels.",{"name":119,"@type":110,"acceptedAnswer":120},"What factors were identified as contributing to caregiver burden?",{"text":121,"@type":113},"Qualitative findings highlighted limited time for self-care, staff turnover and lack of care continuity, and inconsistent communication from AL staff and hospice.","https://schema.org",{"og:url":83,"og:type":124,"og:title":65,"og:site_name":95,"og:description":67},"article",{"robots":126,"canonical":83},"index,follow",{"doc_id":128,"site_id":62},427283,1790740218,{"code":4,"msg":5,"data":131},{"doc_id":128,"user_id":132,"nickname":92,"user_avatar":133,"doc_module":4,"category_id":39,"category_name":40,"doc_title":65,"doc_description":67,"doc_content":134,"file_id":135,"file_url":136,"file_type":137,"file_size":138,"view_count":34,"is_deleted":4,"is_public":8,"is_downloadable":8,"audit_status":8,"page_count":8,"language":139,"language_code":63,"site_id":62,"html_lang":63,"table_of_contents":140,"faqs":141,"seo_title":142,"seo_description":67,"update_tm":143,"read_time":81},4398048949847,"https://ap-avatar.wpscdn.com/avatar/400002536579ef2da7f?_k=1778318612642679267","210 Innovation in Aging, 2025, Vol. 9, No. S2  \nknowledge about dementia and the disease process, qualitative data showed that other key factors contributing to caregiver burden included limited time for self-care, staff turnover and lack of continuity of care, and inconsistent communication from AL staff and hospice. Findings have important implications for interventions aimed at improving care forAL residents with advanced dementia and reducing informal caregiver burden.  \nAbstract citation ID: igaf122.703  \nA STUDY OF CAREGIVER BURDEN AMONG  \nINFORMAL DEMENTIA CAREGIVERS IN  \nASSISTED LIVING  \nMolly Perkins1, Candace Kemp2, Kenneth Hepburn3, Regina Shih4, Regine Haardoerfer3, Carolyn Clevenger3, Miranda Moore1, and Alexis Bender3, 1. Emory University School of Medicine, Atlanta, Georgia, United States,  \n2. Georgia State University, Atlanta, Georgia, United States,  \n3. Emory University, Atlanta, Georgia, United States, 4. Emory University Rollins School of Public Health, Atlanta, Georgia, United States  \nInformal caregivers, especially relatives and friends, play a critical role in caring for assisted living (AL) residents with dementia. Limited empirical evidence suggests that caregiver burden may be greater for informal caregivers in AL compared with other long-term care settings, particularly within context of caring for residents with advanced dementia. This study reports baseline findings from a 5-year NIA-funded (RF1AG069114/R01AG069114) longitudinal project designed to address this knowledge gap and identify potential interventions aimed at reducing challenges and improving care and care experiences. Data derived from baseline surveys, including qualitative open-ended questions, with 134 informal caregivers from  \n39 diverse AL communities in Georgia. We calculated descriptive statistics to characterize the sample and used thematic analysis to analyze the qualitative data. Most participants (mean age = 61) were female (85%), Non-Hispanic White (84%), and had some college education or higher (91%) . Close to half (45%) reported mild to moderate burden on the Zarit Burden Interview (ZBI-12) . More than one-third (35%) reported severe burden.  \nDespite high levels of education, the average percentage of correct answers on the Dementia Knowledge Assessment Tool (DKAT2) was less than half (47%) . In addition to lack of","cbCaiod142LC9sHH","https://ap.wps.com/l/cbCaiod142LC9sHH","pdf",243726,"English","# Background and Study Purpose\n## Study Design and Data Sources\n## Participant Profile and Burden Levels\n## Dementia Knowledge Findings\n## Key Contributors to Caregiver Burden\n## Implications for Interventions","[{\"question\":\"What population does the study focus on?\",\"answer\":\"The study focuses on informal caregivers—relatives and friends—who provide care for assisted living residents with dementia, particularly when residents have advanced dementia.\"},{\"question\":\"How was caregiver burden measured?\",\"answer\":\"Caregiver burden was assessed using the Zarit Burden Interview (ZBI-12), with results reported as mild to moderate versus severe burden levels.\"},{\"question\":\"What factors were identified as contributing to caregiver burden?\",\"answer\":\"Qualitative findings highlighted limited time for self-care, staff turnover and lack of care continuity, and inconsistent communication from AL staff and hospice.\"}]","A STUDY OF CAREGIVER BURDEN AMONG INFORMAL DEMENTIA CAREGIVERS IN ASSISTED LIVING | PDF",1790643386]